Faculty of Medicine and University Hospital Cologne, 27182University of Cologne, Germany.
Department of Medical Psychology, Neuropsychology, Gender Studies and Center for Neuropsychological Diagnostics and Intervention (CeNDI), Faculty of Medicine and University Hospital Cologne, 27182University of Cologne, Germany.
J Child Health Care. 2022 Jun;26(2):319-337. doi: 10.1177/13674935211012933. Epub 2021 Apr 29.
Congenital heart disease (CHD) is a major global health problem. Until recently, the siblings of this group did not receive much attention. This review, conducted from November 2019 to October 2020, aims to summarize knowledge about psychosocial well-being and quality of life (QoL), associated factors, and interventions for siblings of children with CHD. Systematic searches were conducted in PubMed, PsycINFO, PsycARTICLES, Web of Science via EBSCOhost, and CENTRAL. Twelve articles were included. Results showed that psychosocial well-being was impaired in 14% to 40% of siblings. Negative impact of illness was highest for CHD siblings compared to siblings of children with cancer, cystic fibrosis, or diabetes. QoL was impaired in up to one-third. Siblings of children with CHD and cancer rated their QoL lower than those of siblings of children with cystic fibrosis or type-1 diabetes. Associated factors were sibling age, gender, socioeconomic status, miscarriage, previous sibling death, visibility of illness, and severity of condition. Only one of two interventions focused on siblings of CHD children. Although data are scarce and inhomogeneous, it indicates that siblings of CHD children suffer from lower psychosocial well-being and QoL than siblings of children with other chronic conditions. Interventions to improve their situation should be developed.
先天性心脏病（CHD）是一个全球性的重大健康问题。直到最近，该群体的兄弟姐妹才受到关注。本综述从 2019 年 11 月至 2020 年 10 月进行，旨在总结有关先天性心脏病患儿兄弟姐妹的社会心理福祉和生活质量（QoL）、相关因素和干预措施的知识。系统检索了 PubMed、PsycINFO、PsycARTICLES、EBSCOhost 上的 Web of Science 和 CENTRAL。共纳入 12 篇文章。结果表明，14%至 40%的兄弟姐妹存在社会心理福祉受损的情况。与癌症、囊性纤维化或糖尿病患儿的兄弟姐妹相比，CHD 患儿的兄弟姐妹受疾病影响最大。高达三分之一的人生活质量受损。与囊性纤维化或 1 型糖尿病患儿的兄弟姐妹相比，CHD 和癌症患儿的兄弟姐妹对其生活质量的评价较低。相关因素包括兄弟姐妹的年龄、性别、社会经济地位、流产、先前的兄弟姐妹死亡、疾病的可见性和病情的严重程度。仅两项干预措施中的一项关注 CHD 患儿的兄弟姐妹。尽管数据稀缺且不一致，但表明 CHD 患儿的兄弟姐妹比患有其他慢性疾病的兄弟姐妹的社会心理福祉和生活质量更低。应制定改善他们处境的干预措施。
