Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, 37134 Verona, Italy.
Int J Environ Res Public Health. 2021 Apr 14;18(8):4156. doi: 10.3390/ijerph18084156.
The COVID-19 outbreak has impacted the wellbeing of people worldwide, potentially increasing maladaptive psychological responses of vulnerable populations. Although young adults with multiple sclerosis (yawMS) might be at greater risk of developing psychological distress linked to the pandemic, they might also be able to adapt to stress and find meaning in adverse life events. The aim of the present study was to explore benefit finding in response to the pandemic in a sample of yawMS. As part of a larger project, data were collected using a cross-sectional, web-based survey. Benefit finding was analysed using a qualitative thematic approach; descriptive and inferential statistics were performed to describe the sample and compare sub-groups. Out of 247 respondents with mostly relapsing-remitting MS, 199 (31.9 ± 6.97 years) reported at least one benefit. Qualitative analysis showed that during the pandemic yawMS found benefits related to three themes: personal growth, relational growth, and existential growth. No differences in benefit finding were found between age sub-groups (18-30 vs. 31-45). Participants reported a wide range of benefits, some of which seem to be specific to MS or the pandemic. Results have been transformed into tips to be introduced in clinical practice to promote resilience in yawMS through meaning making.
新冠疫情的爆发对全球人民的健康产生了影响，可能会增加弱势群体适应不良的心理反应。尽管多发性硬化症青年患者（yawMS）可能面临更大的风险，出现与疫情相关的心理困扰，但他们也可能能够适应压力，并从逆境中找到意义。本研究旨在探索多发性硬化症青年患者在疫情期间的益处发现。作为一个更大项目的一部分，使用横断面、基于网络的调查收集数据。采用定性主题分析方法分析益处发现；使用描述性和推断性统计方法描述样本并比较亚组。在 247 名多发性硬化症患者中，大多数为复发缓解型，其中 199 名（31.9 ± 6.97 岁）报告至少有一项益处。定性分析表明，在疫情期间，yawMS 发现了与三个主题相关的益处：个人成长、关系成长和存在成长。在年龄亚组（18-30 岁与 31-45 岁）之间没有发现益处发现的差异。参与者报告了广泛的益处，其中一些似乎是多发性硬化症或疫情特有的。研究结果已转化为临床实践中的建议，通过意义构建来促进 yawMS 的韧性。
