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晚期痴呆症的姑息治疗:三个国家的策略比较

Palliative Care in Advanced Dementia: Comparison of Strategies in Three Countries.

作者信息

Sternberg Shelley A, Shinan-Altman Shiri, Volicer Ladislav, Casarett David J, van der Steen Jenny T

机构信息

Maccabi Healthcare Services, Modiin 7177806, Israel.

The Louis and Gabi Weisfeld School of Social Work, Faculty of Social Sciences, Bar Ilan University, Ramat Gan 5290002, Israel.

出版信息

Geriatrics (Basel). 2021 Apr 22;6(2):44. doi: 10.3390/geriatrics6020044.

Abstract

Palliative care including hospice care is appropriate for advanced dementia, but policy initiatives and implementation have lagged, while treatment may vary. We compare care for people with advanced dementia in the United States (US), The Netherlands, and Israel. We conducted a narrative literature review and expert physician consultation around a case scenario focusing on three domains in the care of people with advanced dementia: (1) place of residence, (2) access to palliative care, and (3) treatment. We found that most people with advanced dementia live in nursing homes in the US and The Netherlands, and in the community in Israel. Access to specialist palliative and hospice care is improving in the US but is limited in The Netherlands and Israel. The two data sources consistently showed that treatment varies considerably between countries with, for example, artificial nutrition and hydration differing by state in the US, strongly discouraged in The Netherlands, and widely used in Israel. We conclude that care in each country has positive elements: hospice availability in the US, the general palliative approach in The Netherlands, and home care in Israel. National Dementia Plans should include policy regarding palliative care, and public and professional awareness must be increased.

摘要

包括临终关怀在内的姑息治疗适用于晚期痴呆症患者,但政策举措和实施情况滞后,且治疗方式可能存在差异。我们比较了美国、荷兰和以色列晚期痴呆症患者的护理情况。我们围绕一个病例场景进行了叙述性文献综述并咨询了专家医生,该病例场景聚焦于晚期痴呆症患者护理的三个领域:(1)居住地点,(2)获得姑息治疗的机会,以及(3)治疗。我们发现,美国和荷兰的大多数晚期痴呆症患者居住在养老院,而以色列的患者居住在社区。美国获得专科姑息治疗和临终关怀的机会正在改善,但在荷兰和以色列则有限。这两个数据来源一致表明,各国之间的治疗方式差异很大,例如,人工营养和补液在美国各州有所不同,在荷兰受到强烈反对,而在以色列广泛使用。我们得出结论,每个国家的护理都有积极的方面:美国的临终关怀服务、荷兰的一般姑息治疗方法以及以色列的居家护理。国家痴呆症计划应包括有关姑息治疗的政策,并且必须提高公众和专业人士的认识。

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