108369Henrietta Szold Hadassah University School of Nursing, Jerusalem, Israel.
Faculty of Medicine, 54621Hebrew University of Jerusalem, Jerusalem, Israel.
Dementia (London). 2022 May;21(4):1328-1342. doi: 10.1177/14713012221077533. Epub 2022 Mar 28.
Patients with advanced dementia are commonly hospitalized in acute care wards, yet there is limited data regarding the end-of-life (EOL) care delivered to this population. The aim of the study was to examine EOL care delivered to patients with advanced dementia hospitalized on acute wards as reported by physicians and nurses.
Participants were physicians and nurses from medical and surgical wards of two tertiary hospitals in Israel. Participants completed a self-report questionnaire evaluating EOL care experiences, knowledge, performance, assessment, communication, and perceived futile care regarding patients with dementia.
The questionnaire was completed by 315 providers. There were 190 medical ward respondents and 125 from general surgical wards. Of them, 48.6% recognized dementia as a terminal disease, while 26.0% of the participants reported that they knew the end-of-life preferences for less than 10% of their patients. Among the providers, 53.3% reported that end-of-life ward discussions took place only when there was a life-threatening situation and 11.1%-16.5% never engaged in end-of-life communication regarding EOL patient's preferences, appointing an attorney for the patient, disease trajectory or the essence of palliative care, with patients or their representatives. Only 17.1% reported "never" performing care they considered to be futile for patients with advanced dementia. Controlling for gender, age, role, position (senior/junior), and exposure to patients with advanced dementia, surgical ward respondents reported performing less EOL care than medical ward respondents in almost all aspects of palliative care.
Despite growing attention, a significant portion of staff in acute care wards do not report applying EOL care to patients with advanced dementia in clinical practice, especially surgical ward staff.
患有晚期痴呆症的患者通常在急性护理病房住院,但有关向该人群提供临终关怀的数据有限。本研究的目的是检查在急性病房住院的晚期痴呆症患者接受的临终关怀,这是由医生和护士报告的。
参与者是来自以色列两家三级医院的内科和外科病房的医生和护士。参与者完成了一份自我报告问卷,评估了有关痴呆症患者的临终关怀经验、知识、表现、评估、沟通和感知无益护理。
该问卷由 315 名提供者完成。有 190 名内科病房的受访者和 125 名普通外科病房的受访者。其中,48.6%的人认为痴呆症是一种终末期疾病,而 26.0%的参与者报告说,他们只了解不到 10%的患者的临终意愿。在这些提供者中,53.3%的人报告说,只有在危及生命的情况下才会进行临终关怀病房讨论,而 11.1%-16.5%的人从未就临终患者的偏好、为患者指定律师、疾病轨迹或姑息治疗的本质进行临终沟通,包括患者或其代表。只有 17.1%的人报告说“从未”对患有晚期痴呆症的患者进行他们认为无益的护理。控制性别、年龄、角色(高级/初级)和接触晚期痴呆症患者后,外科病房的受访者报告说,他们在姑息治疗的几乎所有方面都比内科病房的受访者执行的临终关怀更少。
尽管越来越受到关注,但急性护理病房的工作人员中仍有相当一部分人在临床实践中没有为患有晚期痴呆症的患者提供临终关怀,尤其是外科病房的工作人员。