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家庭中1型糖尿病患儿的管理过程:一项扎根理论研究

The Process of Managing the Children with Type 1 Diabetes in the Family: A Grounded Theory Study.

作者信息

Sanjari Mahnaz, Peyrovi Hamid, Mehrdad Neda

机构信息

Diabetes Research Center, Endocrinology and Metabolism Clinical Sciences Institute, Tehran University of Medical Sciences, Tehran, Iran.

Department of Critical Care Nursing, Nursing Care Research Center, School of Nursing and Midwifery, Iran University of Medical Sciences, Tehran, Iran.

出版信息

Iran J Nurs Midwifery Res. 2021 Jan 18;26(1):25-33. doi: 10.4103/ijnmr.IJNMR_5_19. eCollection 2021 Jan-Feb.

DOI:10.4103/ijnmr.IJNMR_5_19
PMID:33954095
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8074732/
Abstract

BACKGROUND

Diabetes is a disease that affects all family members. Parents of children with type 1 diabetes are always concerned about all aspects of children's life. The aim of this study was to elucidate the process of managing children with diabetes in the family.

MATERIALS AND METHODS

This is a qualitative grounded theory of a doctoral dissertation, which was done on 2016. The 18 participants were selected through purposive and theoretical sampling until data saturation. The main participants in this study included parents, siblings, and children with type 1 diabetes. The data was gathered by semi-structured interviews as well as field notes and memos. Data analysis was done concurrently with data collection in four levels, including data analysis for concept and contex, bringing the process into the analysis, and integration of categories according to Corbin and Struss (2008). Core category appeared at the end of integrated categories.

RESULTS

"The family with diabetes in the child's diabetes orbit" as a core category contains the process of managing children with diabetes within the family, which included three main subcategories, including "entering into the diabetes orbit", "movement into the diabetes orbit", and "living into the diabetes orbit".

CONCLUSIONS

The family through the concept of "The family with diabetes in the child's diabetes orbit "as a main concern of families with diabetes suffering diabetes attempt to select and practicing appropriate strategies and manage diabetes and children with diabetes.

摘要

背景

糖尿病是一种影响所有家庭成员的疾病。1型糖尿病患儿的父母总是关心孩子生活的方方面面。本研究的目的是阐明家庭中管理糖尿病患儿的过程。

材料与方法

这是一篇2016年完成的博士论文的定性扎根理论。通过目的抽样和理论抽样选取18名参与者,直至数据饱和。本研究的主要参与者包括父母、兄弟姐妹以及1型糖尿病患儿。数据通过半结构化访谈以及实地记录和备忘录收集。数据分析与数据收集同时进行,分为四个层次,包括概念和背景的数据分析、将过程纳入分析以及根据科尔宾和斯特劳斯(2008年)对类别进行整合。核心类别出现在整合类别的末尾。

结果

“孩子糖尿病轨道中的糖尿病家庭”作为核心类别,包含了家庭中管理糖尿病患儿的过程,其中包括三个主要子类别,即“进入糖尿病轨道”“在糖尿病轨道中移动”和“在糖尿病轨道中生活”。

结论

家庭通过“孩子糖尿病轨道中的糖尿病家庭”这一概念,作为患有糖尿病的糖尿病家庭的主要关注点,试图选择并实施适当策略来管理糖尿病和糖尿病患儿。

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Meaning in life experienced by parents of children living with diabetes.患有糖尿病儿童的父母所体验到的生活意义。
Health Psychol Open. 2019 Mar 5;6(1):2055102919832221. doi: 10.1177/2055102919832221. eCollection 2019 Jan-Jun.
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