Agongo Godfred, Debpuur Cornelius, Amenga-Etego Lucas, Nonterah Engelbert A, Kaburise Michael B, Oduro Abraham, Ramsay Michele, Tindana Paulina
Navrongo Health Research Centre, Navrongo, Ghana.
West African Centre for Cell Biology and Infectious Pathogens, Department of Biochemistry, University of Ghana, Accra, Ghana.
AAS Open Res. 2021 Mar 19;4:15. doi: 10.12688/aasopenres.13081.1. eCollection 2021.
Community and Public engagement (CE) have gained traction as an ethical best practice for the conduct of genomics research, particularly in the context of Africa. In the past 10 years, there has been growing scholarship on the value and practice of engaging key stakeholders including communities involved in genomics research. However, not much has been documented on how research teams, particularly in international collaborative research projects, are navigating the complex process of engagement including the return of key research findings. This paper is part of a series of papers describing the CE processes used in the AWI-Gen study sites. We describe the key processes of engagement, challenges encountered and the major lessons learned. We pay particular attention to the experiences in returning research results to participants and communities within the Demographic and Health Surveillance site in northern Ghana.
社区与公众参与（CE）已成为基因组学研究实施过程中的一项道德最佳实践，尤其在非洲背景下。在过去十年中，关于让包括参与基因组学研究的社区在内的关键利益相关者参与的价值和实践的学术研究不断增加。然而，关于研究团队，特别是国际合作研究项目中的研究团队如何应对包括关键研究结果反馈在内的复杂参与过程的记录并不多。本文是描述AWI-Gen研究地点所采用的社区与公众参与过程的系列论文的一部分。我们描述了参与的关键过程、遇到的挑战以及主要经验教训。我们特别关注在向加纳北部人口与健康监测站点的参与者和社区反馈研究结果方面的经验。
