Rheumatology Department, King's College Hospital, London, UK
Centre for Rheumatic Diseases, King's College London, London, UK.
Ann Rheum Dis. 2021 Oct;80(10):1278-1285. doi: 10.1136/annrheumdis-2021-220249. Epub 2021 May 7.
An important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding of their disease and building their ability to deal effectively with the practical, physical and psychological impacts of it. Self-management skills can be helpful in this regard.
To develop recommendations for the implementation of self-management strategies in IA.
A multidisciplinary taskforce of 18 members from 11 European countries was convened. A systematic review and other supportive information (survey of healthcare professionals (HCPs) and patient organisations) were used to formulate the recommendations.
Three overarching principles and nine recommendations were formulated. These focused on empowering patients to become active partners of the team and to take a more proactive role. The importance of patient education and key self-management interventions such as problem solving, goal setting and cognitive behavioural therapy were highlighted. Role of patient organisations and HCPs in promoting and signposting patients to available resources has been highlighted through the promotion of physical activity, lifestyle advice, support with mental health aspects and ability to remain at work. Digital healthcare is essential in supporting and optimising self-management and the HCPs need to be aware of available resources to signpost patients.
These recommendations support the inclusion of self-management advice and resources in the routine management of people with IA and aim to empower and support patients and encourage a more holistic, patient-centred approach to care which could result in improved patient experience of care and outcomes.
在炎症性关节炎（IA）患者的护理中，一个重要但往往不足的方面是赋予患者充分理解自身疾病的能力，并培养其有效应对疾病实际影响、身体影响和心理影响的能力。自我管理技能在这方面可能会有所帮助。
为在 IA 中实施自我管理策略制定建议。
召集了来自 11 个欧洲国家的 18 名多学科专家组成的工作组。使用系统评价和其他支持性信息（对医疗保健专业人员（HCPs）和患者组织的调查）来制定建议。
制定了三项总体原则和九条建议。这些建议的重点是赋予患者成为团队积极伙伴的能力，并使其发挥更积极的作用。强调了患者教育的重要性以及关键的自我管理干预措施，如解决问题、设定目标和认知行为疗法。强调了患者组织和 HCPs 在促进和引导患者使用现有资源方面的作用，包括促进身体活动、生活方式建议、心理健康方面的支持以及保持工作的能力。数字医疗保健对于支持和优化自我管理至关重要，HCPs 需要了解可提供的资源，以便为患者提供指导。
这些建议支持将自我管理建议和资源纳入 IA 患者的常规管理中，旨在赋予患者权力并为其提供支持，并鼓励采取更全面、以患者为中心的护理方法，从而改善患者的护理体验和结果。
