Department of Neurology, Amsterdam University Medical Center, the Netherlands (C.C., P.J.N., R.M.V.d.B.-V.).
Department of Neurology (S.J.d.H., B.R.), Erasmus MC, University Medical Center, Rotterdam, the Netherlands.
Stroke. 2021 Jul;52(7):2432-2435. doi: 10.1161/STROKEAHA.120.034028. Epub 2021 May 10.
Patient-reported experience measures (PREMs) assess patients' perception of health care. We aimed to identify all reported PREMs for stroke care and critically appraise psychometric properties of PREMs validated for patients with stroke.
Studies on the development, validation, or utilization of PREMs for adult patients with stroke were systematically identified. The Consensus-Based Standards for the Selection of Health Measurement Instruments criteria were used to appraise psychometric performance.
We included 18 studies, examining 13 PREMs. Two PREMs had been developed for stroke care: Consumer Quality Index: Cerebrovascular Accident and Riksstroke. Consumer Quality Index: Cerebrovascular Accident was given a positive psychometric assessment, but its length and limited language applicability impede clinical implementation. Riksstroke was appraised as doubtful. Eleven PREMs were generic. The psychometric performance of 5 generic PREMS, validated for patients with stroke, received conflicting assessments. Six generic PREMs had not been validated in patients with stroke and were therefore not assessed for instrument performance.
Thirteen PREMs have been published for use in stroke care. The stroke-specific Consumer Quality Index: Cerebrovascular Accident has favorable psychometric performance but lacks practical feasibility. Other PREMs have inadequate or unknown psychometric properties. This indicates the need for developing stroke-specific PREMs to support quality improvement and enhance patient-centered care.
患者报告的体验测量（PROMs）评估患者对医疗保健的感知。我们旨在确定所有针对卒中护理的报告 PROMs，并批判性评估针对卒中患者验证的 PROMs 的心理测量特性。
系统地确定了针对成年卒中患者开发、验证或使用 PROMs 的研究。使用基于共识的健康测量仪器选择标准来评估心理测量性能。
我们纳入了 18 项研究，共考察了 13 种 PROMs。有两种 PROMs 是针对卒中护理开发的：消费者质量指数：脑血管意外和 Riksstroke。消费者质量指数：脑血管意外得到了积极的心理测量评估，但它的长度和有限的语言适用性妨碍了临床实施。Riksstroke 被评估为可疑。11 种 PROMs 是通用的。针对卒中患者验证的 5 种通用 PROMs 的心理测量性能得到了相互矛盾的评估。6 种通用 PROMs 尚未在卒中患者中进行验证，因此未对仪器性能进行评估。
已经发表了 13 种用于卒中护理的 PROMs。针对卒中的特定 PROMs：消费者质量指数：脑血管意外具有良好的心理测量性能，但缺乏实际可行性。其他 PROMs 的心理测量特性不足或未知。这表明需要开发针对卒中的特定 PROMs，以支持质量改进和增强以患者为中心的护理。
