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Looking back: three key lessons from 20 years of shaping Japanese genome research regulations.

作者信息

Minari Jusaku, Yokono Megumu, Takashima Kayo, Kokado Minori, Ida Ryuichi, Hishiyama Yutaka

机构信息

Uehiro Research Division for iPS Cell Ethics, Center for iPS Cell Research and Application (CiRA), Kyoto University, Kyoto, Japan.

School of Social Sciences, Waseda University, Tokyo, Japan.

出版信息

J Hum Genet. 2021 Nov;66(11):1039-1041. doi: 10.1038/s10038-021-00923-z. Epub 2021 May 10.

Abstract
摘要

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Reflections on dynamic consent in biomedical research: the story so far.
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Consent insufficient for data release.
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From single biobanks to international networks: developing e-governance.
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