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“我已非昔日之我!”中国布鲁氏菌病患者应对疾病的被迫蜕变过程:一项定性研究

"I'm Not Who I Used to Be!" The Compelled Metamorphosing Process of Coping with Brucellosis Among Chinese Patients: A Qualitative Study.

作者信息

Zhou Mei, Zhu Bo, Xiao Xueling, Suo Xin, Fan Bo, Wang Honghong

机构信息

Xiangya School of Nursing, Central South University, Changsha 410083, China.

School of Nursing, Inner Mongolia Medical University, Hohhot 010110, China.

出版信息

Healthcare (Basel). 2024 Dec 28;13(1):34. doi: 10.3390/healthcare13010034.

Abstract

BACKGROUND

Brucellosis, one of the most common zoonotic diseases globally, is a serious public health problem. The complex and diverse clinical manifestations pose numerous challenges for patients when coping with brucellosis. Scarce studies have been performed in China.

OBJECTIVES

This study aimed to explore the process of coping with brucellosis and different aspects of the phenomenon from the perspective of patients, and propose a conceptual framework of patients' processes in coping with brucellosis.

METHODS

Qualitative study based on constructivist grounded theory methodology using in-depth interviews and focus group discussions. The data analysis included initial coding, focused coding, and theoretical coding using the constant comparative method and memo writing.

RESULTS

The conceptual framework of "compelled metamorphosing" was constructed, which conceptualized three primary types of coping strategies: "blind persistence", "resignation to avoidance", and "proactive pacing". Symptoms, financial strain, information cocoon, emotional value, and family responsibility had an important impact on coping strategies and played a significant role in driving their development.

CONCLUSIONS

This paper provides new insight into patients' lives and describes the strategies patients use to cope with the challenges and problems caused by brucellosis. Compelled metamorphosing represents a basic psychosocial process. These findings can be used to develop future complex interventions and studies.

摘要

背景

布鲁氏菌病是全球最常见的人畜共患病之一,是一个严重的公共卫生问题。其复杂多样的临床表现给患者应对布鲁氏菌病带来诸多挑战。在中国,相关研究较少。

目的

本研究旨在从患者角度探索应对布鲁氏菌病的过程及该现象的不同方面,并提出患者应对布鲁氏菌病过程的概念框架。

方法

基于建构主义扎根理论方法的定性研究,采用深度访谈和焦点小组讨论。数据分析包括初始编码、聚焦编码以及使用持续比较法和撰写备忘录的理论编码。

结果

构建了“被迫蜕变”的概念框架,该框架将应对策略概念化为三种主要类型:“盲目坚持”“消极回避”和“积极调整”。症状、经济压力、信息茧房、情感价值和家庭责任对应对策略有重要影响,并在推动其发展中发挥重要作用。

结论

本文为了解患者生活提供了新视角,描述了患者应对布鲁氏菌病所致挑战和问题的策略。被迫蜕变代表了一个基本的社会心理过程。这些发现可用于开展未来的复杂干预措施和研究。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b4d0/11720008/e2f1aeedf926/healthcare-13-00034-g001.jpg

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