College of Nursing, University of Wisconsin-Milwaukee, Milwaukee, WI, USA.
J. Zilber School of Public Health, University of Wisconsin-Milwaukee, Milwaukee, WI, USA.
West J Nurs Res. 2022 Aug;44(8):773-779. doi: 10.1177/01939459211016503. Epub 2021 May 17.
Studies investigating children and families' experiences at end of life in Saudi Arabia are limited. However, one factor found to have an impact on patient and primary caregiver end of life care is Islam. Since women are the primary caregivers for children in Saudi Arabia, the purpose of this study was to explore the perceptions of Muslim women caring for a child at end of life. Using a qualitative approach, interviews were conducted with 24 female primary caregivers caring for a child at end of life. Thematic analysis was used to analyze the data. The researchers found that Islamic beliefs and practices had a positive influence on primary caregivers' experiences. Islamic beliefs and practices helped support participants through their child's end of life experience. Results have implications for health care education, practice, policy, and future research on end of life in Saudi Arabia other Muslim countries.
在沙特阿拉伯，研究儿童和家庭临终体验的工作十分有限。然而，有一个因素被发现会对患者和主要照顾者的临终关怀产生影响，那就是伊斯兰教。由于女性是沙特阿拉伯儿童的主要照顾者，因此本研究的目的是探讨照顾临终儿童的穆斯林女性的看法。本研究采用定性方法，对 24 名照顾临终儿童的女性主要照顾者进行了访谈。采用主题分析法对数据进行了分析。研究人员发现，伊斯兰教的信仰和实践对主要照顾者的体验产生了积极的影响。伊斯兰教的信仰和实践帮助参与者度过了孩子的临终阶段。研究结果对沙特阿拉伯和其他穆斯林国家的临终关怀的医疗保健教育、实践、政策和未来研究具有重要意义。
