Centre of Islamic Studies, University of Cambridge, Cambridge, UK.
Ethox Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK.
Bioethics. 2023 Jan;37(1):57-68. doi: 10.1111/bioe.13109. Epub 2022 Nov 30.
In this paper, I will share findings from a qualitative study that offers a thematic analysis of 76 interviews with Muslim patients and families as well as doctors, nurses, allied health professionals, chaplains and community faith leaders across the United Kingdom. The data show that for many Muslims, Islam-its texts and lived practice-is of central importance when they are deliberating about death and dying . Central to these deliberations are virtues rooted within Islamic theology and ethics, the traditions of adab (virtue) and aqhlaq (proper conduct). Themes analysed include theological and moral understandings around the virtues of hope and acceptance. The study provides an analysis of these themes in relation to the experiences of Muslim patients and families arriving at meaning making around death and dying and how this interfaces with their interaction with biomedicine and healthcare. The study shows that the juxtaposition of different values and moral frameworks require careful negotiation when Muslim patients and families encounter the healthcare system. The study also describes how healthcare professionals and staff of other faiths and no faith encounter Muslim beliefs and practices, and the challenges they face in interpreting virtues and values rooted in faith, especially when these are perceived to be mutually opposed or inconsistent.
本文将分享一项定性研究的发现，该研究对英国各地的 76 名穆斯林患者及其家属、医生、护士、联合健康专业人员、神职人员和社区宗教领袖进行了 76 次访谈，进行了主题分析。数据显示，对于许多穆斯林来说，伊斯兰教——其文本和实践——在他们思考死亡和临终问题时非常重要。这些讨论的核心是根植于伊斯兰神学和伦理学、adab（美德）和 aqhlaq（得体行为）传统的美德。分析的主题包括围绕希望和接受美德的神学和道德理解。本研究分析了这些主题与穆斯林患者及其家属在死亡和临终问题上获得意义的经历之间的关系，以及它们如何与他们与生物医学和医疗保健的互动相联系。该研究表明，当穆斯林患者及其家属遇到医疗保健系统时，不同价值观和道德框架的并置需要仔细协商。该研究还描述了其他信仰和无信仰的医疗保健专业人员和工作人员如何遇到穆斯林信仰和实践，以及他们在解释根植于信仰的美德和价值观时所面临的挑战，尤其是当这些价值观被认为相互对立或不一致时。
