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加拿大SPOR数据平台:一项促进多辖区丰富数据研究的全国性倡议。

The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research.

作者信息

Dahl Lindsey Todd, Katz Alan, McGrail Kimberlyn, Diverty Brent, Ethier Jean-Francois, Gavin Frank, McDonald James Ted, Paprica P Alison, Schull Michael, Walker Jennifer D, Wu Juliana

机构信息

Manitoba Centre for Health Policy (MCHP), Rady Faculty of Health Sciences, Winnipeg, Manitoba R3E 3P5.

University of Manitoba, Departments of Community Health Sciences and Family Medicine; Director, Manitoba Centre for Health Policy (MCHP), Rady Faculty of Health Sciences, Winnipeg, Manitoba R3E 3P5.

出版信息

Int J Popul Data Sci. 2020 Nov 9;5(1):1374. doi: 10.23889/ijpds.v5i1.1374.

Abstract

Administrative health data is recognized for its value for conducting population-based research that has contributed to numerous improvements in health. In Canada, each province and territory is responsible for administering its own publicly funded health care program, which has resulted in multiple sets of administrative health data. Challenges to using these data within each of these jurisdictions have been identified, which are further amplified when the research involves more than one jurisdiction. The benefits to conducting multi-jurisdictional studies has been recognized by the Canadian Institutes of Health Research (CIHR), which issued a call in 2017 for proposals that address the challenges. The grant led to the creation of Health Data Research Network Canada (HDRN), with a vision is to establish a distributed network that facilitates and accelerates multi-jurisdictional research in Canada. HDRN received funding for seven years that will be used to support the objectives and activities of an initiative called the Strategy for Patient-Oriented Research Canadian Data Platform (SPOR-CDP). In this paper, we describe the challenges that researchers face while using, or considering using, administrative health data to conduct multi-jurisdictional research and the various ways that the SPOR-CDP will attempt to address them. Our objective is to assist other groups facing similar challenges associated with undertaking multi-jurisdictional research.

摘要

行政卫生数据因其在开展基于人群的研究方面的价值而得到认可,这类研究为健康状况的诸多改善做出了贡献。在加拿大,每个省和地区负责管理各自的公共资助医疗保健项目,这导致了多套行政卫生数据的产生。已确定在这些司法管辖区内使用这些数据时存在的挑战,而当研究涉及不止一个司法管辖区时,这些挑战会进一步加剧。开展多司法管辖区研究的益处已得到加拿大卫生研究院(CIHR)的认可,该机构于2017年呼吁提出应对这些挑战的提案。这笔拨款促成了加拿大卫生数据研究网络(HDRN)的创建,其愿景是建立一个分布式网络,以促进和加速加拿大的多司法管辖区研究。HDRN获得了为期七年的资金,将用于支持一项名为“以患者为导向的研究加拿大数据平台战略”(SPOR-CDP)的倡议的目标和活动。在本文中我们描述了研究人员在使用或考虑使用行政卫生数据进行多司法管辖区研究时所面临的挑战,以及SPOR-CDP将试图应对这些挑战的各种方式。我们的目标是帮助其他面临与开展多司法管辖区研究相关类似挑战的团体。

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