Suppr超能文献

transgender 医疗保健中的决策方法:概念分析与伦理意义。

Decision-making approaches in transgender healthcare: conceptual analysis and ethical implications.

机构信息

Center of Expertise on Gender Dysphoria, Amsterdam UMC, location VUmc, de Boelelaan 1118, 1081 HZ, Amsterdam, The Netherlands.

Department of Ethics, Law and Humanities, Amsterdam UMC, location VUmc, de Boelelaan 1089a, 1081 HV, Amsterdam, The Netherlands.

出版信息

Med Health Care Philos. 2021 Dec;24(4):687-699. doi: 10.1007/s11019-021-10023-6. Epub 2021 May 18.

Abstract

Over the past decades, great strides have been made to professionalize and increase access to transgender medicine. As the (biomedical) evidence base grows and conceptualizations regarding gender dysphoria/gender incongruence evolve, so too do ideas regarding what constitutes good treatment and decision-making in transgender healthcare. Against this background, differing care models arose, including the 'Standards of Care' and the so-called 'Informed Consent Model'. In these care models, ethical notions and principles such as 'decision-making' and 'autonomy' are often referred to, but left unsubstantiated. This not only transpires into the consultation room where stakeholders are confronted with many different ethical challenges in decision-making, but also hampers a more explicit discussion of what good decision-making in transgender medicine should be comprised of. The aim of this paper is to make explicit the conceptual and normative assumptions regarding decision-making and client autonomy underpinning the 'Standards of Care' and 'Informed Consent Model' currently used in transgender care. Furthermore, we illustrate how this elucidation aids in better understanding stakeholders' ethical challenges related to decision-making. Our ethical analysis lays bare how distinct normative ambiguities in both care models influence decision-making in practice and how foregrounding one normative model for decision-making is no moral panacea. We suggest that the first steps towards good decision-making in gender-affirming medical care are the acknowledgement of its inherent normative and moral dimensions and a shared, dialogical approach towards the decision-making process.

摘要

在过去的几十年里,人们在使跨性别医学专业化和增加其可及性方面取得了巨大进展。随着(生物医学)证据基础的不断发展,以及对性别焦虑/性别不一致的概念不断演变,对于什么是跨性别医疗保健中的良好治疗和决策也有了不同的想法。在此背景下,出现了不同的护理模式,包括“护理标准”和所谓的“知情同意模式”。在这些护理模式中,经常提到“决策”和“自主权”等伦理概念和原则,但没有得到证实。这不仅体现在咨询室中,利益相关者在决策中面临着许多不同的伦理挑战,也阻碍了更明确地讨论跨性别医学中的良好决策应该包括哪些内容。本文的目的是明确目前在跨性别护理中使用的“护理标准”和“知情同意模式”中关于决策和客户自主权的概念和规范假设。此外,我们还说明了这种阐明如何有助于更好地理解利益相关者在决策方面的伦理挑战。我们的伦理分析揭示了这两种护理模式中存在的规范性模糊性如何在实践中影响决策,以及将一种规范性决策模式置于首位并不是道德上的万灵药。我们认为,迈向性别肯定医疗保健中良好决策的第一步是承认其内在的规范性和道德维度,并采取一种共同的、对话式的方法来处理决策过程。

相似文献

1
Decision-making approaches in transgender healthcare: conceptual analysis and ethical implications.
Med Health Care Philos. 2021 Dec;24(4):687-699. doi: 10.1007/s11019-021-10023-6. Epub 2021 May 18.
2
Moral Challenges in Transgender Care: A Thematic Analysis Based on a Focused Ethnography.
Arch Sex Behav. 2018 Nov;47(8):2319-2333. doi: 10.1007/s10508-018-1287-3. Epub 2018 Sep 18.
4
Capacity to consent: a scoping review of youth decision-making capacity for gender-affirming care.
BMC Med Ethics. 2024 Oct 8;25(1):108. doi: 10.1186/s12910-024-01107-y.
7
Medically assisted gender affirmation: when children and parents disagree.
J Med Ethics. 2020 May;46(5):295-299. doi: 10.1136/medethics-2019-105567. Epub 2019 Dec 31.
9
[The origin of informed consent].
Acta Otorhinolaryngol Ital. 2005 Oct;25(5):312-27.

引用本文的文献

1
Endocrine issues in critically ill transgender patients: A narrative review.
World J Crit Care Med. 2025 Sep 9;14(3):100660. doi: 10.5492/wjccm.v14.i3.100660.
3
Principlism and contemporary ethical considerations for providers of transgender health care.
Int J Transgend Health. 2024 Jan 19;26(3):611-629. doi: 10.1080/26895269.2024.2303462. eCollection 2025.
5
Clarifying our stance on BMI and accessibility in gender-affirming surgery: a commitment to inclusive care and dialogue - a reply to Castle & Klein (2024).
Int J Transgend Health. 2024 Feb 29;26(1):253-255. doi: 10.1080/26895269.2024.2321036. eCollection 2025.
6
7
Capacity to consent: a scoping review of youth decision-making capacity for gender-affirming care.
BMC Med Ethics. 2024 Oct 8;25(1):108. doi: 10.1186/s12910-024-01107-y.
8
Voices from a Multidisciplinary Healthcare Center: Understanding Barriers in Gender-Affirming Care-A Qualitative Exploration.
Int J Environ Res Public Health. 2023 Jul 15;20(14):6367. doi: 10.3390/ijerph20146367.
9
Sexual & reproductive health information on minor consent forms for pubertal suppression and gender affirming hormones.
Front Reprod Health. 2023 Apr 19;5:1071212. doi: 10.3389/frph.2023.1071212. eCollection 2023.

本文引用的文献

1
Dialogic Consensus as the Moral Philosophical Basis for Shared Decision-making.
Linacre Q. 2019 May;86(2-3):168-171. doi: 10.1177/0024363919841775. Epub 2019 May 16.
2
Trans health care from a depathologization and human rights perspective.
Public Health Rev. 2020 Feb 19;41:3. doi: 10.1186/s40985-020-0118-y. eCollection 2020.
3
Commentary 2: From Observation to Joint Normative Analysis-Dialogical Empirical Ethics Research.
J Empir Res Hum Res Ethics. 2019 Dec;14(5):444-446. doi: 10.1177/1556264618822603b.
5
Performing informed consent in transgender medicine.
Soc Sci Med. 2019 Apr;226:190-197. doi: 10.1016/j.socscimed.2019.02.053. Epub 2019 Mar 3.
6
Dialogic Consensus in Medicine-A Justification Claim.
J Med Philos. 2019 Jan 14;44(1):71-84. doi: 10.1093/jmp/jhy038.
8
Moral Challenges in Transgender Care: A Thematic Analysis Based on a Focused Ethnography.
Arch Sex Behav. 2018 Nov;47(8):2319-2333. doi: 10.1007/s10508-018-1287-3. Epub 2018 Sep 18.
9
Endocrine Treatment of Gender-Dysphoric/Gender-Incongruent Persons: An Endocrine Society Clinical Practice Guideline.
J Clin Endocrinol Metab. 2017 Nov 1;102(11):3869-3903. doi: 10.1210/jc.2017-01658.
10
Needs and concerns of transgender individuals regarding interdisciplinary transgender healthcare: A non-clinical online survey.
PLoS One. 2017 Aug 28;12(8):e0183014. doi: 10.1371/journal.pone.0183014. eCollection 2017.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验