Kennedy Krieger Institute, USA.
Johns Hopkins Bloomberg School of Public Health, USA.
Autism. 2021 Nov;25(8):2189-2198. doi: 10.1177/13623613211013683. Epub 2021 May 19.
Autism spectrum disorder (ASD) can be diagnosed as early as 18 months of age. However, the average age at diagnosis in the United States is over 2 years later. A lot has been written about the many barriers families face when seeking a diagnosis for their child. One area of research that has received no attention is whether separation between a child's biological parents affects the age at which a child is diagnosed with ASD. This study was conducted among 561 children who were receiving an ASD diagnosis for the first time. On average, these children were 5 years of age. The study took place in an urban, outpatient specialty autism clinic in the United States. Biological parents self-reported their relationship status during the evaluation. This was categorized as either "together" (married or living together but not married) or "not together" (separated, divorced, or never married). At the time of diagnosis, most children's biological parents were together (69%). We found children of parents who were together were diagnosed 1.4 years earlier than those who were not together. These findings have important implications for providing support to families that separate early in a child's life, with the goal of reducing the age at ASD evaluation among single parents and those who have been separated from their child's other biological parent. Providing support to these families is important since earlier age at diagnosis leads to earlier intervention, which can improve long-term outcomes for the child, family, and community as a whole.
自闭症谱系障碍 (ASD) 可以在 18 个月大时确诊。然而,在美国,平均确诊年龄要晚 2 年多。有很多关于家庭在为孩子寻求诊断时面临的许多障碍的文章。但有一个研究领域尚未受到关注,那就是孩子的亲生父母是否分开会影响孩子被诊断出自闭症的年龄。这项研究是在首次接受 ASD 诊断的 561 名儿童中进行的。这些孩子的平均年龄为 5 岁。研究在美国一家城市、门诊专科自闭症诊所进行。亲生父母在评估期间自行报告其关系状况。这被归类为“在一起”(已婚或同住但未婚)或“不在一起”(分居、离婚或从未结婚)。在诊断时,大多数孩子的亲生父母在一起(69%)。我们发现,与父母在一起的孩子比不在一起的孩子早诊断出 ASD 1.4 年。这些发现对为孩子生命早期就分开的家庭提供支持具有重要意义,目标是减少单亲父母和与孩子的另一位亲生父母分开的父母的 ASD 评估年龄。为这些家庭提供支持很重要,因为更早的诊断年龄会导致更早的干预,从而改善孩子、家庭和整个社区的长期结果。