Praxisgemeinschaft Rheumatologie-Nephrologie, Erlangen, Germany.
Medizinische Klinik 3, Rheumatology/Immunology, Universitätsklinik Würzburg, Würzburg, Germany.
J Med Internet Res. 2021 May 20;23(5):e28164. doi: 10.2196/28164.
Real-world data are crucial to continuously improve the management of patients with rheumatic and musculoskeletal diseases (RMDs). The German RheumaDatenRhePort (RHADAR) registry encompasses a network of rheumatologists and researchers in Germany providing pseudonymized real-world patient data and allowing timely and continuous improvement in the care of RMD patients. The RHADAR modules allow automated anamnesis and adaptive coordination of appointments regarding individual urgency levels. Further modules focus on the collection and integration of electronic patient-reported outcomes in between consultations. The digital RHADAR modules ultimately allow a patient-centered adaptive approach to integrated medical care starting as early as possible in the disease course. Such a closed-loop system consisting of various modules along the whole patient pathway enables comprehensive and timely patient management in an unprecedented manner.
真实世界的数据对于不断改善风湿和肌肉骨骼疾病（RMDs）患者的管理至关重要。德国 RheumaDatenRhePort（RHADAR）登记处由德国的风湿病学家和研究人员组成的网络，提供匿名的真实世界患者数据，并允许及时和持续改进 RMD 患者的护理。RHADAR 模块允许对病史进行自动记录，并根据个人紧急程度自动协调预约。进一步的模块侧重于在咨询之间收集和整合电子患者报告的结果。最终，数字化的 RHADAR 模块允许在疾病过程中尽早开始采用以患者为中心的自适应方法，实现综合医疗服务。这种由沿着整个患者路径的各种模块组成的闭环系统，以前所未有的方式实现了全面和及时的患者管理。
