Department of Rehabilitation and Examination, Metropolia University of Applied Sciences, Helsinki, Finland.
Faculty of Medicine, University of Helsinki, Helsinki, Finland.
Disabil Rehabil. 2022 May;44(9):1709-1719. doi: 10.1080/09638288.2021.1921061. Epub 2021 May 25.
The purpose of the co-development project was to create a tool that enhances children's active participation and agency in rehabilitation and in everyday life.
Action research was the methodological approach. Participants in the different phases of the process (2015-2017) were children with disabilities, parents and rehabilitation professionals. The co-development process included: (1) designing the tool's first version, (2) piloting the tool, (3) evaluating the tool by collecting feedback and reflection, (4) generating the tool's final version.
Through the co-development process, an accommodating and digital tool called the CMAP Book-a description of the child's meaningful activities and participation-was developed. The CMAP Book is used with an electronic app enabling the identification and description of what is meaningful in daily life from the child's perspective with videos, photos, pictures, recording and writing. The tool enables the child, family and professionals to prepare and build collaboration in rehabilitation with flexibility according to child and family needs.
Use of the CMAP Book promotes the active involvement of the child and parents in designing the rehabilitation process in daily life in partnership with professionals. The stakeholder involvement in the co-development facilitated meaningful results and a concrete tool for rehabilitation.IMPLICATIONS FOR REHABILITATIONThe CMAP book is a new tool that enhances the child's active participation and agency in the rehabilitation process based on meaningful activities in everyday life expressed by the child.Identifying and utilising meaningful issues in the child's daily life through collaboration increases the child's commitment and motivation, and thus may enhance the benefits and effects of rehabilitation. Through co-development, the child and his/her family can be active and equal partners not only in development projects but also in the rehabilitation process.In the future, child-specific practices and policies should be developed to promote participatory co-research between families and clinicians linked to the daily lives of families with children.
共同开发项目的目的是创建一个工具，增强儿童在康复和日常生活中的积极参与和能动性。
行动研究是该方法的基础。不同阶段的参与者（2015-2017 年）包括残疾儿童、家长和康复专业人员。共同开发过程包括：（1）设计工具的第一个版本，（2）试用工具，（3）通过收集反馈和反思评估工具，（4）生成工具的最终版本。
通过共同开发过程，开发了一种具有适应性和数字化的工具，称为 CMAP 书籍——描述孩子有意义的活动和参与。CMAP 书籍与电子应用程序一起使用，该应用程序可以从孩子的角度识别和描述日常生活中有意义的事情，包括视频、照片、图片、录音和书写。该工具使孩子、家庭和专业人员能够根据孩子和家庭的需求灵活地准备和建立康复合作。
使用 CMAP 书籍可以促进孩子和家长积极参与设计日常生活中的康复过程，与专业人员合作。利益相关者参与共同开发促进了有意义的结果和具体的康复工具。
CMAP 书籍是一种新的工具，它基于孩子在日常生活中表达的有意义的活动，增强了孩子在康复过程中的积极参与和能动性。通过合作识别和利用孩子日常生活中有意义的问题，可以增加孩子的承诺和动力，从而可能增强康复的益处和效果。通过共同开发，孩子和他/她的家人不仅可以在发展项目中，而且可以在康复过程中成为积极和平等的合作伙伴。在未来，应该制定针对儿童的具体实践和政策，以促进家庭和临床医生之间的参与式共同研究，与家庭的日常生活相关联。
