Vänskä Nea, Sipari Salla, Haataja Leena
Future Proof Health and Wellbeing Innovation Hub, Metropolia University of Applied Sciences, Helsinki, Finland.
Department of Pediatric Neurology, University of Helsinki, Helsinki, Finland.
J Child Health Care. 2024 Sep 28:13674935241287880. doi: 10.1177/13674935241287880.
Practices for promoting a child's best interests in rehabilitation are not sufficiently understood. This study describes the practices from the perspectives of professionals and parents of children with disabilities. We conducted 11 interviews: 5 in focus groups with professionals ( = 27 [69%]), 3 with parents ( = 9 [23%]), and 3 individual interviews of paediatric neurologists ( = 3 [8%]). We used a qualitative approach, which included inductive content analysis, to examine the transcribed interview data. The practices for promoting a child's best interests consisted of collective framing of child-specific rehabilitation, fostering a fulfilling daily life for the child, and ensuring appropriate rehabilitation. This was enhanced by using child-specific practices and comprehensively understanding the child's rehabilitation in everyday life but was hindered by the absence of an established process and guidelines. The results highlighted substantial challenges in collaboration aligned with the child's best interests, enabling the child's active participation, and addressing the individual needs of the child and family. Promoting best interests through family-professional partnerships by using a systemic and ecological approach could guide the rehabilitation process and ensure the child's right to participate.
促进儿童在康复中最大利益的做法尚未得到充分理解。本研究从专业人员和残疾儿童家长的角度描述了这些做法。我们进行了11次访谈：5次与专业人员进行焦点小组访谈（n = 27 [69%]），3次与家长进行访谈（n = 9 [23%]），3次对儿科神经科医生进行个人访谈（n = 3 [8%]）。我们采用了一种定性方法，包括归纳内容分析，来检查转录的访谈数据。促进儿童最大利益的做法包括针对儿童的康复进行集体规划、为儿童营造充实的日常生活以及确保适当的康复。通过采用针对儿童的做法并全面了解儿童在日常生活中的康复情况，这一点得到了加强，但由于缺乏既定的流程和指导方针而受到阻碍。结果突出了在与儿童最大利益保持一致的协作、使儿童能够积极参与以及满足儿童和家庭的个人需求方面存在的重大挑战。通过采用系统和生态的方法，通过家庭 - 专业伙伴关系促进最大利益，可以指导康复过程并确保儿童的参与权。
