Anglia Ruskin University, UK.
King's College London, UK; Bethlem Royal Hospital, UK.
Health (London). 2021 Sep;25(5):515-534. doi: 10.1177/13634593211023130. Epub 2021 Jun 3.
Young adults are frequent users of social media, but the help and hindrance of social media for living well with long-term conditions (LTCs) in young adulthood is little-researched. The aim of this paper was to explore the experiences of social media use amongst young adults with LTCs. Interviews with 15 young adults with LTCs explored their experiences of using social media more broadly and in relation to online health communities. Social media came with both 'good and bad sides' which required a balancing act to manage (overarching theme), as reflected in the following subthemes: (1) Relationships: reducing social isolation versus need for face-to-face contact; (2) Comparisons: normalising versus negative (upward) comparisons; (3) Community: fitting in versus feeling left out; (4) Emotions: inspiring versus distress contagion; and (5) Knowledge: exchanging useful information versus fear of decline. The findings highlight the importance of young adults' self-reflection/awareness of social media's impact on their wellbeing, identifying when limited or increased use may be preferable. Whilst there is a 'good' to social media such as increased feelings of belonging and connection, this should not be the sole focus of future self-management interventions; as its use also contributes to feelings of distress, fear and not fitting in, and participants desire face-to-face contact.
年轻人是社交媒体的高频使用者,但社交媒体对于年轻人的长期疾病的生活的帮助和阻碍却鲜少被研究。本文旨在探讨年轻人使用社交媒体的体验,以及社交媒体在他们与线上健康社区的互动中所起的作用。社交媒体具有两面性,需要平衡管理(总主题),这反映在以下子主题中:(1)人际关系:减少社交孤立与面对面接触的需求;(2)比较:正常化与负面(向上)比较;(3)社区:融入与被排斥;(4)情绪:激发灵感与情绪传染;(5)知识:交流有用信息与担心病情恶化。研究结果强调了年轻人自我反思/意识到社交媒体对其幸福感的影响的重要性,确定何时适度或增加使用可能更可取。虽然社交媒体有增加归属感和联系的好处,但这不应成为未来自我管理干预的唯一重点;因为它的使用也会导致焦虑、恐惧和不适应,而参与者渴望面对面的交流。