Brewer Jacqueline, Bartlett Mary, Harris David, Hui Christine
Beaumont Health System, Sterling Heights, MI, USA.
Winthrop-University Hospital, Mineola, NY, USA.
Pulm Circ. 2021 May 21;11(2):20458940211015813. doi: 10.1177/20458940211015813. eCollection 2021 Apr-Jun.
Effective communication within the patient-provider relationship is a key aspect of shared decision-making and associated with several positive patient outcomes. Although previous studies suggest that patients' and providers' conceptualization of what constitutes effective communication differ, there is no available literature discussing patient preferences for communication. The objective of this study was to determine the words and phrases pulmonary arterial hypertension patients prefer to hear when discussing their disease with their physician. A total of 227 pulmonary arterial hypertension patients completed a survey that included a 20-item questionnaire specifically designed to assess patient preference for words and phrases when discussing their disease and treatment; statistically significant differences were observed across all items of the questionnaire. Patients preferred their physician ask them how they have "been feeling" (63%) rather than how they have "been doing". In addition, 96% of patients indicated that they wanted to hear that this is "… the best medicine " rather than this is "the best medicine". Considerably more patients (60%) indicated they want their physician to say, "We want you to have fewer symptoms" rather than "We want you to feel more normal." They also indicated they wanted the "most effective" medicine (82%) rather than the "most aggressive" medicine (7%). The results of this study suggest that pulmonary arterial hypertension patients have strong preferences for the language their providers use when discussing their disease and treatment options. Given the role that effective communication has on important health outcomes, pulmonary arterial hypertension providers need to consider these findings when communicating with patients.
患者与医疗服务提供者关系中的有效沟通是共同决策的关键方面，并与患者的一些积极结果相关。尽管先前的研究表明，患者和医疗服务提供者对有效沟通的概念理解有所不同，但尚无文献讨论患者对沟通方式的偏好。本研究的目的是确定肺动脉高压患者在与医生讨论病情时更喜欢听到的词汇和短语。共有227名肺动脉高压患者完成了一项调查，其中包括一份专门设计的20项问卷，用于评估患者在讨论病情和治疗时对词汇和短语的偏好；问卷的所有项目均观察到具有统计学意义的差异。患者更喜欢医生询问他们“感觉如何”（63%），而不是“过得怎样”。此外，96%的患者表示他们希望听到这是“……最好的药物”，而不是“最好的药物”。相当多的患者（60%）表示他们希望医生说“我们希望你症状更少”，而不是“我们希望你感觉更正常”。他们还表示希望使用“最有效”的药物（82%），而不是“最积极”的药物（7%）。本研究结果表明，肺动脉高压患者对医疗服务提供者在讨论病情和治疗方案时使用的语言有强烈的偏好。鉴于有效沟通对重要健康结果的作用，肺动脉高压医疗服务提供者在与患者沟通时需要考虑这些发现。
