Johnson Jerry C, Hayden Tara, Taylor Lynne Allen, Gilbert Arthur, Mitchell Marshall Paul Hughes
Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Wissahickon Hospice, Bala Cynwyd, Pennsylvania, USA.
Health Equity. 2020 Dec 30;4(1):533-541. doi: 10.1089/heq.2020.0042. eCollection 2020.
African Americans with life-limiting illnesses experience significant health inequities. Lay health workers (LHWs) may help overcome existing challenges of communicating with African Americans about advance care planning (ACP) and end-of-life decision-making. Church-based LHWs have some advantages over other LHWs but no curriculum exists to fully prepare them. This article describes the development, content, format, and implementation of a curriculum designed to meet this need. We created a church-based curriculum to train African American, LHWs as communications-facilitators who can support persons with life-limiting illnesses, not only with ACP but also with issues that arise as illnesses progress. Learners are church members whom we call comfort care supporters. The curriculum organizes the LHW interactions with clients by the mnemonic LIGHT: Listening, Identifying, Guiding, Helping, and Translating. The final curriculum consists of three parts: (1) a 26-h classroom component delivered in nine modules organized around eight themes: meaning and prognosis of a life-limiting illness, spirituality and the meaning of death, understanding the dying process, major decisions and choices, goals of care, end-of-life services, and resources, intrafamily communication, and role and activities of the LHW; (2) a visit component; and (3) experiential, case-based discussions during monthly meetings. LHWs may improve quality of care and thus reduce health inequities at the end-of-life. Preparing LHWs for conversations about ACP is necessary but insufficient. This curriculum also prepares LHWs to attend to the spiritual needs of clients and to support clients with their other needs as their illness progresses.
患有危及生命疾病的非裔美国人面临着严重的健康不平等问题。非专业健康工作者(LHWs)或许有助于克服在与非裔美国人就预先护理计划(ACP)和临终决策进行沟通时所面临的现有挑战。基于教会的非专业健康工作者相较于其他非专业健康工作者具有一些优势,但目前尚无完整的课程来充分培训他们。本文描述了为满足这一需求而设计的课程的开发、内容、形式及实施情况。我们创建了一个基于教会的课程,以培训非裔美国非专业健康工作者成为沟通促进者,他们不仅能够在预先护理计划方面,还能在疾病进展过程中出现的问题上为患有危及生命疾病的人提供支持。学习者是教会成员,我们称他们为舒适护理支持者。该课程通过助记符LIGHT来组织非专业健康工作者与客户的互动:倾听、识别、引导、帮助和转化。最终课程由三部分组成:(1)一个26小时的课堂部分,以九个模块呈现,围绕八个主题展开:危及生命疾病的意义和预后、灵性与死亡的意义、理解死亡过程、重大决策和选择、护理目标、临终服务与资源、家庭内部沟通以及非专业健康工作者的角色和活动;(2)一个家访部分;(3)每月会议期间基于经验和案例的讨论。非专业健康工作者可以提高护理质量,从而减少临终时的健康不平等现象。让非专业健康工作者为关于预先护理计划的对话做好准备是必要的,但还不够。本课程还让非专业健康工作者准备好关注客户的精神需求,并在疾病进展时支持客户的其他需求。