Multiple Sclerosis Center, IRCCS Mondino Foundation, via Mondino 2, 27100, Pavia, Italy.
Novartis Farma S.P.A, Origgio, VA, Italy.
Neurol Sci. 2022 Feb;43(2):1207-1214. doi: 10.1007/s10072-021-05371-3. Epub 2021 Jun 15.
In people with multiple sclerosis (PwMS), strict follow-up is essential. Telemedicine has the potential to overcome many of the difficulties in routine management. Herein, we present a structured protocol that can be used to remotely manage patients with MS, describing in detail the steps to be taken and exams needed at each stage. A working group was established which developed a tailored protocol that can be adapted to a variety of settings. The overall protocol consisted of 5 phases: enrolment, document sharing phase, pre-evaluation, virtual visit, and post-visit phase, which was divided into 14 individual steps. As of October 2020, 25 virtual visits have been carried out, all via Skype. The patient's caregiver was present during visits and had an active role. The average duration of the virtual visit was 24 min, and that of the pre-visit and post-visit were around 15 min each. Overall satisfaction as rated by physicians was considered high (8.0 ± 0.5). Using the system usability scale (SUS), patients also favorably rated the virtual visit (96.6 ± 6.1). In 20% of cases, the virtual visit was not sufficient to provide adequate information and an in-person clinical visit was recommended. The described protocol has the potential to provide benefits for the healthcare system as well as patients and their caregivers both during and beyond COVID-19 pandemic.
在多发性硬化症患者(PwMS)中,严格的随访至关重要。远程医疗有可能克服常规管理中的许多困难。在此,我们提出了一个结构化的方案,可以远程管理 MS 患者,详细描述了每个阶段需要采取的步骤和检查。成立了一个工作组,制定了一个适合各种环境的定制方案。总体方案包括 5 个阶段:入组、文件共享阶段、预评估、虚拟访问和访问后阶段,分为 14 个单独的步骤。截至 2020 年 10 月,已经进行了 25 次虚拟访问,全部通过 Skype 进行。患者的护理人员在访问期间在场,并发挥积极作用。虚拟访问的平均持续时间为 24 分钟,预访问和访问后阶段各约 15 分钟。医生对整体满意度的评价很高(8.0±0.5)。使用系统可用性量表(SUS),患者也对虚拟访问给予了高度评价(96.6±6.1)。在 20%的情况下,虚拟访问不足以提供足够的信息,建议进行面对面的临床访问。所描述的方案有可能在 COVID-19 大流行期间及之后为医疗保健系统以及患者及其护理人员带来益处。