Larkin Michael, Unwin Gemma, Iyer Malvika, Tsimopoulou Ioanna, Zahid Sofia, Malik Kulsoom, Stenfert Kroese Biza, Rose John L
Aston University, UK.
School of Psychology, University of Birmingham, UK.
Int J Dev Disabil. 2018 Jun 8;64(3):195-203. doi: 10.1080/20473869.2018.1469807.
To explore the perspective of adults with intellectual disabilities from minority ethnic groups, on their relationship with social care services. Thirty-two adults took part in semi-structured interviews. Transcripts were analyzed within a Pluralist framework, adopting the structure of Template Analysis and then drawing on phenomenological, narrative, and discursive approaches. Our participants were generally positive about the services which they received, which they evaluated primarily in terms of their continuing good relationship(s) with specific workers. Our respondents were sophisticated users of cultural resources and identities; the concept of 'cultural affordance' may be useful alternative to 'cultural competence'. We discuss three distinctive narratives about independence (Stability; Progress; Resistance). Each highlights the importance of maintaining connectedness to others, and the crucial role played by ownership of decision-making. We have developed a set of resources which service providers (and researchers) can use with people with intellectual disabilities, in order to support mutual understanding, service planning and delivery.
为探究少数族裔智力残疾成年人对其与社会护理服务关系的看法。32名成年人参与了半结构化访谈。访谈记录在多元主义框架内进行分析,采用模板分析结构,然后借鉴现象学、叙事和话语方法。我们的参与者总体上对他们所接受的服务持积极态度,他们主要根据与特定工作人员持续良好的关系来评估这些服务。我们的受访者是文化资源和身份的成熟使用者;“文化可供性”概念可能是“文化能力”的有用替代。我们讨论了关于独立性的三种独特叙事(稳定;进步;抵抗)。每种叙事都强调了与他人保持联系的重要性以及决策自主权所起的关键作用。我们开发了一套资源,服务提供者(和研究人员)可与智力残疾者一起使用,以支持相互理解、服务规划和提供。