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为一对双语家庭的两位 ASD 青少年的父母提供一种家长评定的结局测量工具:简要报告。

Providing a parent-administered outcome measure in a bilingual family of a father and a mother of two adolescents with ASD: brief report.

机构信息

Department of Psychiatry and Behavioral Sciences, MIND Institute University of California Davis, Sacramento, CA, USA.

Department of Spanish and Portuguese, University of California Davis, Davis, CA, USA.

出版信息

Dev Neurorehabil. 2022 Feb;25(2):140-144. doi: 10.1080/17518423.2021.1942281. Epub 2021 Jun 25.

DOI:10.1080/17518423.2021.1942281
PMID:34170787
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8709875/
Abstract

There is a need for psychometrically sound outcome measures for treatment studies that have a low burden for families and that are available in multiple languages. We have developed a language assessment in English and Spanish that parents can administer to their children at home via telehealth-delivered procedures. The current case study presents descriptive data on a single family of two parent-child dyads. Both the mother and father from a single family were trained in their primary language (Spanish) on how to administer the Expressive Language Sampling - Narration (ELS-N) in their secondary language (English) to their two English-speaking monolingual sons with ASD through telehealth-delivered procedures. Both parents learned to administer the procedures to a predetermined level of fidelity. Extension to a larger sample of bilingual families is needed for this home-based, parent-administered test; however, the present results suggest feasibility even when the language of training and administration differ.

摘要

需要一种具有良好心理测量学特性的结果测量方法,这种方法对家庭的负担较低,并且可以使用多种语言。我们已经开发出一种英语和西班牙语的语言评估方法,父母可以通过远程医疗程序在家中为孩子进行评估。本案例研究提供了一个单一家庭的两个父母-孩子对子的描述性数据。一个家庭中的母亲和父亲都接受了他们的主要语言(西班牙语)培训,学习如何通过远程医疗程序,用他们的次要语言(英语)向他们的两个患有自闭症的英语单语儿子进行表达性语言采样-叙述(ELS-N)评估。两位父母都学会了以预定的保真度来执行这些程序。对于这种基于家庭、由父母管理的测试,需要扩展到更大的双语家庭样本;然而,即使培训和管理语言不同,目前的结果也表明了这种方法的可行性。