Department of Philosophy and Bioethics, Faculty of Health Sciences, Medical College, Jagiellonian University, Michalowskiego 12, 31-126, Krakow, Poland.
Department of Public Health, University of Copenhagen, Øster Farimagsgade 5, building 10, 1014, Copenhagen, Denmark.
Med Health Care Philos. 2021 Dec;24(4):529-542. doi: 10.1007/s11019-021-10036-1. Epub 2021 Jun 25.
This article examines the compatibility and relevance of Gabriel Marcel's phenomenology of hope in interdisciplinary research on the role of hope in end-of-life (EOL) care. Our analysis is divided into three thematic topics which examine the various shades of hope observed in Marcel's phenomenology of hope and in the collection of 20 EOL studies on hope as experienced by adult palliative care (PC) patients, health care professionals (HCP) and parents of terminally ill children. The three topics defining the shades of hope are: the meaning of hope in its dynamic aspects, the dialectics of hope and despair, and the transcendent facets of hope. We analyse how Marcel's understanding of hope is reflected in EOL studies, and how this perception can enrich the philosophy of PC and significantly deepen and broaden HCPs' understanding of hope. Our findings prove that despite terminological differences between Marcelian phenomenology and the concepts of hope in the 20 EOL studies, hope emerges as a resourceful movement towards being. Implementing Marcelian hope within communication in EOL care could help in HCPs' interpersonal approach to patients as his concept harbors a holistic perception of the existential situation of a person. Equally, introducing Marcel's phenomenology of hope into the clinical encounter could play a beneficial role in improving the ability of patients to adapt to the difficult conditions of their disease and PC treatment.
本文探讨了加布里埃尔·马塞尔(Gabriel Marcel)的希望现象学在跨学科研究中对终末期护理(EOL)中希望作用的兼容性和相关性。我们的分析分为三个主题,分别探讨了马塞尔希望现象学和 20 项关于希望的 EOL 研究中观察到的不同色调的希望,这些研究涉及成年姑息治疗(PC)患者、医疗保健专业人员(HCP)和绝症儿童的父母。定义希望色调的三个主题是:希望在其动态方面的意义、希望与绝望的辩证法,以及希望的超越层面。我们分析了马塞尔对希望的理解如何反映在 EOL 研究中,以及这种看法如何丰富 PC 哲学,并显著加深和拓宽 HCP 对希望的理解。我们的发现证明,尽管马塞尔现象学和 20 项 EOL 研究中的希望概念在术语上存在差异,但希望作为一种有资源的存在运动出现。在 EOL 护理中的沟通中实施马塞尔的希望,可以帮助 HCP 以人际的方式接近患者,因为他的概念蕴含着对人的存在状况的整体理解。同样,将马塞尔的希望现象学引入临床相遇中,可以在改善患者适应疾病和 PC 治疗困难条件的能力方面发挥有益作用。