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Health Soc Care Community. 2021 Sep;29(5):1559-1565. doi: 10.1111/hsc.13221. Epub 2020 Nov 10.
2
Being the next of kin of an older person living in a nursing home: an interview study about quality of life.作为居住在养老院的老年人的近亲:一项关于生活质量的访谈研究。
BMC Geriatr. 2019 Nov 21;19(1):324. doi: 10.1186/s12877-019-1343-4.
3
Evaluation of person-centeredness in nursing homes after a palliative care intervention: pre- and post-test experimental design.养老院姑息治疗干预后的以患者为中心的评估:前后测试实验设计。
BMC Palliat Care. 2019 May 31;18(1):44. doi: 10.1186/s12904-019-0431-8.
4
Female Family Caregivers' Experiences During Nursing Home Admission: A Phenomenological Qualitative Study.女性家庭照顾者在养老院入住期间的经历:一项现象学质性研究。
J Gerontol Nurs. 2019 Jun 1;45(6):33-43. doi: 10.3928/00989134-20190430-01.
5
Next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes: a phenomenographic study.亲属对参与养老院老年人护理意义的认知:一项现象学研究
Scand J Caring Sci. 2019 Jun;33(2):400-408. doi: 10.1111/scs.12636. Epub 2019 Jan 3.
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End-of-life care in a nursing home: Assistant nurses' perspectives.养老院临终关怀:助理护士的观点。
Nurs Ethics. 2019 Sep;26(6):1721-1733. doi: 10.1177/0969733018779199. Epub 2018 Jun 27.
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Striking a Balance: A Qualitative Study of Next of Kin Participation in the Care of Older Persons in Nursing Homes in Sweden.寻求平衡:瑞典养老院中亲属参与老年人护理的定性研究
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Critical points in the experience of spouse caregivers of patients who have suffered a stroke. A phenomenological interpretive study.脑卒中患者配偶照顾者经历中的关键点。现象学解释性研究。
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9
Implementation of knowledge-based palliative care in nursing homes and pre-post post evaluation by cross-over design: a study protocol.基于知识的临终关怀在养老院的实施及前后交叉设计评价:研究方案。
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当伴侣住进养老院时的分手与新起点:一项访谈研究

Breaking Up and a New Beginning When One's Partner Goes into a Nursing Home: An Interview Study.

作者信息

Ahlström Gerd, Markeling Nina Stååhl, Liljenberg Ulrika, Rosén Helena

机构信息

Department of Health Sciences, Faculty of Medicine, Lund University, 221 00 Lund, Sweden.

Home Healthcare Unit, 275 31 Sjöbo, Sweden.

出版信息

Healthcare (Basel). 2021 Jun 4;9(6):672. doi: 10.3390/healthcare9060672.

DOI:10.3390/healthcare9060672
PMID:34199811
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8226602/
Abstract

In aging societies worldwide, spouses take on great responsibility for care when their partner continues to live at home. Nursing home placement occurs when the partner becomes too frail due to multimorbidity, and this will cause a change in the spouse's life. This study aimed to explore the spouse's experience of their partner's move to a nursing home. Two interviews were conducted at 9-month intervals within the project entitled "Implementation of Knowledge-Based Palliative Care in Nursing Homes". Thirteen spouses from both urban and rural areas were included, with an age-range of 60-86 years (median 72). Qualitative content analysis was performed. The main findings were captured in two themes: Breaking up of close coexistence and Towards a new form of daily life. The first encompassed processing loneliness, separation and grief, exhaustion, increased burden, and a sense of guilt. The second encompassed a sense of freedom, relief, acceptance, support and comfort. Professionals in both home care and nursing home care need to develop and provide a support programme conveying knowledge of the transition process to prevent poor quality of life and depression among the spouses. Such a programme should be adaptable to individual needs and should ideally be drawn up in consultation with both partners.

摘要

在全球老龄化社会中,当伴侣继续居家生活时,配偶承担着巨大的照料责任。当伴侣因多种疾病缠身而变得过于虚弱时,就会将其安置到养老院,这将改变配偶的生活。本研究旨在探索配偶对于伴侣入住养老院的体验。在名为“养老院中基于知识的姑息治疗的实施”的项目中,每隔9个月进行两次访谈。纳入了13名来自城市和农村地区的配偶,年龄在60 - 86岁之间(中位数为72岁)。进行了定性内容分析。主要发现归纳为两个主题:亲密共处的瓦解和迈向新的日常生活形式。第一个主题包括处理孤独、分离和悲伤、疲惫、负担加重以及内疚感。第二个主题包括自由感、解脱感、接纳感、支持感和安慰感。居家护理和养老院护理的专业人员都需要制定并提供一个支持方案,传达有关过渡过程的知识,以防止配偶生活质量下降和出现抑郁情绪。这样的方案应该适应个体需求,理想情况下应在与伴侣双方协商后制定。