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基因歧视:将亚洲视角引入辩论

Genetic discrimination: introducing the Asian perspective to the debate.

作者信息

Kim Hannah, Ho Calvin W L, Ho Chih-Hsing, Athira P S, Kato Kazuto, De Castro Leonardo, Kang Hui, Huxtable Richard, Zwart Hub, Ives Jonathan, Lee Ilhak, Joly Yann, Kim So Yoon

机构信息

Asian Institute for Bioethics and Health Law, Yonsei University College of Medicine, Seoul, South Korea.

University of Hong Kong, Hong Kong, China.

出版信息

NPJ Genom Med. 2021 Jul 1;6(1):54. doi: 10.1038/s41525-021-00218-4.

Abstract

Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.

摘要

我们的文章旨在通过对相关立法、政策和实践进行分析,全面描绘七个亚洲司法管辖区如何应对基因歧视(GD)挑战。根据我们的研究结果,关于预防或减轻基因歧视的政策讨论和行动在就业、保险、残疾、婚姻和计划生育方面的框架较为狭窄。除韩国外,我们研究的司法管辖区均未通过专门立法来预防基因歧视。然而,为使亚洲真正从其近期在基因组学方面的科技进步中受益,我们强调这些司法管辖区需要通过协调的监管和治理机制,更积极地应对基因歧视带来的挑战。

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