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当有未成年子女的癌症患者的父母去世时谈论死亡:姑息治疗中家庭谈话干预的初步研究。

Talking about death when a parent with dependent children dies of cancer: A pilot study of the Family Talk Intervention in palliative care.

机构信息

Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden.

Department of Neuroscience, National Centre for Disaster Psychiatry, Uppsala University, Uppsala, Sweden.

出版信息

Death Stud. 2022;46(10):2384-2394. doi: 10.1080/07481187.2021.1947415. Epub 2021 Jul 2.

Abstract

This study focused on families with dependent children who participated in the Family Talk Intervention (FTI) and lost a parent during the intervention or directly thereafter. The aim was to explore how they perceived information and communication about the imminent death during the illness trajectory and after the loss. Seven families from palliative homecare settings in Sweden participated. This study suggests that it is important to support family communication when a parent is dying, since communication in this situation is unlike everyday family communication, as they enter a complex and existentially unfamiliar area, hard to initiate on their own.

摘要

本研究关注的是有受抚养子女的家庭,他们参加了家庭谈话干预(FTI),并在干预期间或之后直接失去了一位家长。目的是探讨他们如何在疾病轨迹和失去亲人后感知有关即将到来的死亡的信息和沟通。来自瑞典姑息治疗家庭护理环境的七个家庭参与了这项研究。本研究表明,当父母去世时,支持家庭沟通是很重要的,因为这种情况下的沟通不同于日常的家庭沟通,因为他们进入了一个复杂且存在上不熟悉的领域,很难自行发起。

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