Department of Caring Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
Department of Neuroscience, National Centre for Disaster Psychiatry, Uppsala University, Uppsala, Sweden.
Palliat Support Care. 2022 Aug;20(4):512-518. doi: 10.1017/S1478951521001322.
The entire family is affected when a parent is severely ill. Parents often need and appreciate professional support when talking to children about illness and death. The family talk intervention (FTI) is family-centered and intends to promote communication about the illness and its consequences, support parenting to enhance family coping and help family members share experiences with each other to create a shared family history. This study aimed to explore potential effects of FTI in specialized palliative home care, as reported by parents.
This pre-post test intervention pilot was conducted in specialized palliative home care. A convergent mixed-method design was used to analyze interview and questionnaire data. Twenty families with dependent children were recruited from two specialized palliative home care units in Stockholm, Sweden.
Parents reported that family communication improved after participation in FTI as family members learned communication strategies that facilitated open sharing of thoughts and feelings. Increased open communication helped family members gain a better understanding of each other's perspectives. Parents reported that relationships with their partner and children had improved as they now shared several strategies for maintaining family relationships. Parents were also less worried following participation in FTI. The ill parents stated that they gained a sense of security and were less worried about the future.
This study adds to the evidence that FTI may be a useful intervention for families with dependent children and an ill parent in a palliative care setting. This trial is registered at ClinicalTrials.gov Identifier NCT03119545.
当父母病重时，整个家庭都会受到影响。当父母与孩子谈论疾病和死亡时，他们通常需要并欣赏专业的支持。家庭谈话干预（FTI）以家庭为中心，旨在促进关于疾病及其后果的沟通，支持育儿以增强家庭应对能力，并帮助家庭成员相互分享经验，以创建共同的家庭史。本研究旨在探讨 FTI 在专门的姑息治疗家庭护理中的潜在效果，这是由父母报告的。
这是一项在专门的姑息治疗家庭护理中进行的前后测试干预性试点研究。采用收敛混合方法设计来分析访谈和问卷数据。从瑞典斯德哥尔摩的两个专门的姑息治疗家庭护理单位招募了 20 个有受抚养子女的家庭。
父母报告说，他们在参加 FTI 后，家庭沟通得到了改善，因为家庭成员学会了促进开放分享思想和感受的沟通策略。增加的开放沟通有助于家庭成员更好地理解彼此的观点。父母报告说，他们与伴侣和孩子的关系得到了改善，因为他们现在分享了维持家庭关系的几种策略。父母在参加 FTI 后也不那么担心了。患病的父母表示，他们感到安全，并减少了对未来的担忧。
本研究增加了证据表明，FTI 可能是姑息治疗环境中有受抚养子女和患病父母的家庭的有用干预措施。该试验在 ClinicalTrials.gov 标识符 NCT03119545 下注册。
