Pauktuutit Inuit Women of Canada, Ottawa, Canada.
School of Nursing, University of Ottawa, Ottawa, Canada.
Int J Circumpolar Health. 2021 Dec;80(1):1949843. doi: 10.1080/22423982.2021.1949843.
Cancer is a leading cause of death among Inuit. A legacy of colonialism, residential schools, and systemic racism has eroded trust among Inuit and many do not receive culturally safe care. This study aimed to explore the meaning of culturally safe cancer survivorship care for Inuit, and barriers and facilitators to receiving it in an urban setting in Ontario Canada. As Inuit and Western researchers, we conducted a descriptive qualitative study. We held two focus groups (n = 27) with cancer survivors and family members, and semi-structured interviews (n = 7) with health providers. Data were analysed using thematic content analysis.Three broad themes emerged as central to culturally safe care: access to traditional ways of life, communication, and family involvement. Family support, patient navigators, and designated spaces were facilitators; lack of support for traditional ways, like country food, was a barrier. Participants were clear what constituted culturally safe care, but major barriers exist. Lack of direction at institutional and governmental levels contributes to the complexity of issues that prevent Inuit from engaging in and receiving culturally safe cancer care. To understand how to transform healthcare to be culturally safe, studies underpinned by Inuit epistemology, values, and principles are required.
癌症是因纽特人死亡的主要原因之一。殖民主义、寄宿学校和系统性种族主义的遗留问题破坏了因纽特人之间的信任,许多人无法获得文化安全的护理。本研究旨在探索文化安全的癌症生存护理对因纽特人的意义,以及在加拿大安大略省的城市环境中接受这种护理的障碍和促进因素。作为因纽特人和西方研究人员,我们进行了一项描述性定性研究。我们举行了两次焦点小组(n=27),参与者为癌症幸存者及其家属,以及与健康提供者进行了 7 次半结构化访谈。使用主题内容分析对数据进行了分析。有三个广泛的主题是文化安全护理的核心:获得传统生活方式、沟通和家庭参与。家庭支持、患者导航员和指定空间是促进因素;缺乏对传统方式(如土产食物)的支持是一个障碍。参与者清楚地了解了什么是文化安全的护理,但主要障碍依然存在。机构和政府层面缺乏指导,这导致了各种问题的复杂性,使因纽特人无法参与和接受文化安全的癌症护理。为了了解如何使医疗保健实现文化安全,需要基于因纽特认识论、价值观和原则的研究。