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J Res Nurs. 2020 Aug;25(5):443-455. doi: 10.1177/1744987119880234. Epub 2019 Dec 18.
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Interventions to improve cancer survivorship among Indigenous Peoples and communities: a systematic review with a narrative synthesis.改善原住民和社区癌症患者生存状况的干预措施:系统评价与叙述性综合。
Support Care Cancer. 2021 Nov;29(11):7029-7048. doi: 10.1007/s00520-021-06216-7. Epub 2021 May 24.
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Nurses as agents of disruption: Operationalizing a framework to redress inequities in healthcare access among Indigenous Peoples.护士作为变革推动者:实施一个框架以纠正原住民在医疗保健获取方面的不平等现象。
Nurs Inq. 2021 Jul;28(3):e12394. doi: 10.1111/nin.12394. Epub 2020 Dec 21.
4
A review of health and wellness studies involving Inuit of Manitoba and Nunavut.曼尼托巴省和努纳武特地区因纽特人健康和保健研究综述。
Int J Circumpolar Health. 2020 Jun 15;79(1):1779524. doi: 10.1080/22423982.2020.1779524.
5
Perspectives of Nunavut patients and families on their cancer and end of life care experiences.努纳武特地区患者及其家属对癌症和临终关怀体验的看法。
Int J Circumpolar Health. 2020 Dec;79(1):1766319. doi: 10.1080/22423982.2020.1766319.
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Healthy ageing in the far North: perspectives and prescriptions.遥远北方地区的健康老龄化:观点与建议。
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Facing history for the future of nursing.面对历史,展望护理未来。
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Time to Diagnosis and Treatment with Palliative Radiotherapy among Inuit Patients with Cancer from the Arctic Territory of Nunavut, Canada.加拿大努纳武特北极地区因纽特癌症患者姑息性放射治疗的诊断和治疗时间。
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9
Indigenous perspectives on health: Integration with a Canadian model of practice.原住民对健康的观点:与加拿大实践模式的整合。
Can J Occup Ther. 2019 Jun;86(3):220-231. doi: 10.1177/0008417419832284. Epub 2019 Apr 24.
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Our health counts: population-based measures of urban Inuit health determinants, health status, and health care access.我们的健康很重要:基于人口的城市因纽特人健康决定因素、健康状况和医疗保健获取情况的衡量标准。
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理解城市社区因纽特人文化安全的癌症生存护理。

Understanding culturally safe cancer survivorship care with inuit in an urban community.

机构信息

Pauktuutit Inuit Women of Canada, Ottawa, Canada.

School of Nursing, University of Ottawa, Ottawa, Canada.

出版信息

Int J Circumpolar Health. 2021 Dec;80(1):1949843. doi: 10.1080/22423982.2021.1949843.

DOI:10.1080/22423982.2021.1949843
PMID:34219604
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8259824/
Abstract

Cancer is a leading cause of death among Inuit. A legacy of colonialism, residential schools, and systemic racism has eroded trust among Inuit and many do not receive culturally safe care. This study aimed to explore the meaning of culturally safe cancer survivorship care for Inuit, and barriers and facilitators to receiving it in an urban setting in Ontario Canada. As Inuit and Western researchers, we conducted a descriptive qualitative study. We held two focus groups (n = 27) with cancer survivors and family members, and semi-structured interviews (n = 7) with health providers. Data were analysed using thematic content analysis.Three broad themes emerged as central to culturally safe care: access to traditional ways of life, communication, and family involvement. Family support, patient navigators, and designated spaces were facilitators; lack of support for traditional ways, like country food, was a barrier. Participants were clear what constituted culturally safe care, but major barriers exist. Lack of direction at institutional and governmental levels contributes to the complexity of issues that prevent Inuit from engaging in and receiving culturally safe cancer care. To understand how to transform healthcare to be culturally safe, studies underpinned by Inuit epistemology, values, and principles are required.

摘要

癌症是因纽特人死亡的主要原因之一。殖民主义、寄宿学校和系统性种族主义的遗留问题破坏了因纽特人之间的信任,许多人无法获得文化安全的护理。本研究旨在探索文化安全的癌症生存护理对因纽特人的意义,以及在加拿大安大略省的城市环境中接受这种护理的障碍和促进因素。作为因纽特人和西方研究人员,我们进行了一项描述性定性研究。我们举行了两次焦点小组(n=27),参与者为癌症幸存者及其家属,以及与健康提供者进行了 7 次半结构化访谈。使用主题内容分析对数据进行了分析。有三个广泛的主题是文化安全护理的核心:获得传统生活方式、沟通和家庭参与。家庭支持、患者导航员和指定空间是促进因素;缺乏对传统方式(如土产食物)的支持是一个障碍。参与者清楚地了解了什么是文化安全的护理,但主要障碍依然存在。机构和政府层面缺乏指导,这导致了各种问题的复杂性,使因纽特人无法参与和接受文化安全的癌症护理。为了了解如何使医疗保健实现文化安全,需要基于因纽特认识论、价值观和原则的研究。