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努纳武特地区患者及其家属对癌症和临终关怀体验的看法。

Perspectives of Nunavut patients and families on their cancer and end of life care experiences.

机构信息

Department of Anthropology, University of Toronto Mississauga , Mississauga, Ontario, Canada.

Qaujigiartiit Health Research Centre , Iqaluit, Canada.

出版信息

Int J Circumpolar Health. 2020 Dec;79(1):1766319. doi: 10.1080/22423982.2020.1766319.

DOI:10.1080/22423982.2020.1766319
PMID:32449489
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7448904/
Abstract

The present study arose from a recognition among service providers that Nunavut patients and families could be better supported during their care journeys by improved understanding of people's experiences of the health-care system. Using a summative approach to content analysis informed by the Model for Community Health Research, we conducted in-depth interviews with 10 patients and family members living in Nunavut communities who experienced cancer or end of life care. Results included the following themes: difficulties associated with extensive medical travel; preference for care within the community and for family involvement in care; challenges with communication; challenges with culturally appropriate care; and the value of service providers with strong ties to the community. These themes emphasise the importance of health service capacity building in Nunavut with emphasis on Inuit language and cultural knowledge. They also underscore efforts to improve the quality and consistency of communication among health service providers working in both community and southern referral settings and between service providers and the patients and families they serve.

摘要

本研究源于服务提供者的认识,即通过更好地了解人们对医疗保健系统的体验,努纳武特的患者和家庭在护理过程中可以得到更好的支持。我们采用基于社区健康研究模型的总结性内容分析方法,对 10 名居住在努纳武特社区、经历过癌症或临终关怀的患者和家属进行了深入访谈。结果包括以下主题:与广泛的医疗旅行相关的困难;偏爱在社区内进行护理,并希望家人参与护理;沟通方面的挑战;文化适宜性护理方面的挑战;以及与社区联系紧密的服务提供者的价值。这些主题强调了努纳武特地区加强卫生服务能力建设的重要性,重点是因纽特语言和文化知识。它们还强调了努力提高在社区和南部转诊环境中工作的卫生服务提供者之间以及服务提供者与他们所服务的患者和家庭之间沟通的质量和一致性。

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Clin Oncol (R Coll Radiol). 2020 Jan;32(1):60-67. doi: 10.1016/j.clon.2019.07.001. Epub 2019 Jul 19.
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An integrated knowledge translation approach to develop a shared decision-making strategy for use by Inuit in cancer care: a qualitative study.一种综合知识转化方法,用于制定一项共享决策策略,供因纽特人在癌症护理中使用:一项定性研究。
Curr Oncol. 2019 Jun;26(3):192-204. doi: 10.3747/co.26.4729. Epub 2019 Jun 1.
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