挪威标准化癌症患者路径中患者等待时间的体验——一项定性访谈研究。
Patient experiences of waiting times in standardised cancer patient pathways in Norway - a qualitative interview study.
机构信息
Department of Public Health and Nursing, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, 7491, Trondheim, Norway.
SINTEF, Department of Health Research, P.O.Box 4760 Torgården, 7465, Trondheim, Norway.
出版信息
BMC Health Serv Res. 2021 Jul 5;21(1):651. doi: 10.1186/s12913-021-06679-8.
OBJECTIVE
Standardised cancer patient pathways (CPP) are implemented within cancer care with an aim to ensure standardised waiting times for diagnosis and treatment. This article investigates how patients in Norway experience waiting times within a CPP.
METHODS
Qualitative semi-structured interviews with 19 patients who had been through CPP for breast cancer, prostate cancer or malignant melanoma in Norway.
RESULTS
Few patients knew about the term CPP but trusted that waiting times were standardised to decrease mortality. Their experiences of waiting depended on their expectations as much as the period they waited. Patients generally felt safe about the timing of treatment, but not all expectations of a rapid response from health services were met. Short waiting times were interpreted as a sign of urgency, and a change of pace between urgent action and prolonged periods of waiting were disturbing.
CONCLUSIONS
Patients are comforted by knowing they are within a structured CPP that ensures rapid diagnosis and start of treatment. CPPs still need to be improved to avoid delays, allow for adaptions to patient needs, and include more information to avoid stress.
目的
在癌症护理中实施标准化癌症患者路径（CPP），旨在确保诊断和治疗的标准化等待时间。本文调查了挪威患者在 CPP 内的等待时间体验。
方法
对 19 名在挪威接受过乳腺癌、前列腺癌或恶性黑色素瘤 CPP 的患者进行了定性半结构化访谈。
结果
很少有患者知道 CPP 这个术语，但他们相信等待时间是标准化的，可以降低死亡率。他们的等待体验不仅取决于他们的期望，还取决于他们等待的时间。患者通常对治疗时间感到放心，但并非所有对卫生服务快速反应的期望都得到满足。较短的等待时间被解释为紧急的迹象，而在紧急行动和长时间等待之间的节奏变化令人不安。
结论
患者知道自己在一个确保快速诊断和开始治疗的结构化 CPP 中会感到安慰。CPP 仍需要改进，以避免延误，适应患者的需求，并提供更多信息以避免压力。
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