Duncan Nicholas, Deekes Nigel, FitzGerald David, Ng Tin Wai Terry, Raghavan Manoj
Queen Elizabeth Hospital and University of Birmingham Birmingham UK.
Patient representative.
EJHaem. 2021 May 14;2(3):394-399. doi: 10.1002/jha2.220. eCollection 2021 Aug.
The ongoing COVID-19 pandemic has presented numerous challenges to the provision of patient care within hematology. We undertook a questionnaire-based study investigating the experiences and opinions of patients with chronic myeloid leukemia (CML) in the UK in relation to the different models of follow-up care received during the pandemic. One hundred fifty-four patients completed the online questionnaire. Only 19% of patients had experienced remote clinics prior to the pandemic compared with 91% afterward. After having experience of remote clinics, the proportion of patients who were positive about the remote clinic concept increased from 34% to 52% (P < .05). However, when asked to compare their experiences with face to face versus remote clinics, 48% preferred face-to-face clinics compared with 17% preferring remote clinics (35% expressed no preference). During the pandemic, frequency of blood tests was unchanged for 71% of patients, although they were performed in a number of different locations. The majority of patients (57%) had medication delivered to their home, with a small number (8%) having difficulty obtaining their medication. In terms of future models of care, 72% of patients were in favor of building remote appointments into the clinic model with 61% expressing a preference for a mixture of remote and face-to-face appointments. There was also interest in greater utilization of primary care for blood testing. Our findings should help optimize future models of care for CML patients.
持续的 COVID-19 大流行给血液学领域的患者护理带来了诸多挑战。我们开展了一项基于问卷调查的研究,调查了英国慢性髓性白血病(CML)患者在大流行期间接受不同随访护理模式的经历和看法。154 名患者完成了在线问卷。与大流行之后 91% 的患者经历过远程诊所相比,大流行之前只有 19% 的患者有此经历。在体验过远程诊所后,表示对远程诊所概念持积极态度的患者比例从 34% 增至 52%(P < 0.05)。然而,当被要求比较面对面诊所和远程诊所的体验时,48% 的患者更喜欢面对面诊所,相比之下,只有 17% 的患者更喜欢远程诊所(35% 表示无偏好)。在大流行期间,71% 的患者血液检测频率未变,尽管检测是在多个不同地点进行的。大多数患者(57%)的药物被送到家中,少数患者(8%)在获取药物方面有困难。就未来护理模式而言,72% 的患者赞成在诊所模式中纳入远程预约,61% 的患者表示更喜欢远程预约和面对面预约相结合的方式。患者们还对更多利用初级护理进行血液检测感兴趣。我们的研究结果应有助于优化未来 CML 患者的护理模式。