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J Oncol Pharm Pract. 2021 Apr;27(3):644-649. doi: 10.1177/1078155221990101. Epub 2021 Jan 27.
2
Virtual Cancer Care During the COVID-19 Pandemic and Beyond: A Call for Evaluation.COVID-19大流行期间及之后的虚拟癌症护理:评估呼吁。
JMIR Cancer. 2020 Nov 24;6(2):e24222. doi: 10.2196/24222.
3
Delivering Cancer Care During the COVID-19 Pandemic: Recommendations and Lessons Learned From ASCO Global Webinars.在2019冠状病毒病大流行期间提供癌症护理:美国临床肿瘤学会全球网络研讨会的建议及经验教训
JCO Glob Oncol. 2020 Sep;6:1461-1471. doi: 10.1200/GO.20.00423.
4
Optimizing the Communication with Cancer Patients During the COVID-19 Pandemic: Patient Perspectives.在 COVID-19 大流行期间优化与癌症患者的沟通:患者视角
Patient Prefer Adherence. 2020 Jul 20;14:1205-1212. doi: 10.2147/PPA.S263022. eCollection 2020.
5
Managing cancer patients during the COVID-19 pandemic: an ESMO multidisciplinary expert consensus.《COVID-19 大流行期间的癌症患者管理:ESMO 多学科专家共识》
Ann Oncol. 2020 Oct;31(10):1320-1335. doi: 10.1016/j.annonc.2020.07.010. Epub 2020 Jul 31.
6
Survey on the situation of telepharmacy as applied to the outpatient care in hospital pharmacy departments in Spain during the COVID-19 pandemic.关于西班牙医院药房在新冠疫情期间应用远程药学服务于门诊护理情况的调查。
Farm Hosp. 2020 Jul 1;44(4):135-140. doi: 10.7399/fh.11527.
7
Chronic myeloid leukemia management at the time of the COVID-19 pandemic in Italy. A campus CML survey.意大利新冠疫情期间慢性髓系白血病的管理。一项校园慢性髓系白血病调查。
Leukemia. 2020 Aug;34(8):2260-2261. doi: 10.1038/s41375-020-0904-z. Epub 2020 Jun 18.
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Caring for patients with cancer in the COVID-19 era.在 COVID-19 时代照顾癌症患者。
Nat Med. 2020 May;26(5):665-671. doi: 10.1038/s41591-020-0874-8. Epub 2020 Apr 16.
9
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Br J Haematol. 2020 Apr;189(2):241-243. doi: 10.1111/bjh.16620. Epub 2020 Mar 15.
10
Telemedicine in Cancer Care.癌症护理中的远程医疗
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英国新冠疫情期间慢性髓系白血病患者的护理模式:患者对远程会诊态度的变化及未来影响

Models of care for chronic myeloid leukemia patients during the COVID-19 pandemic in the United Kingdom: Changes in patient attitudes to remote consultations and future implications.

作者信息

Duncan Nicholas, Deekes Nigel, FitzGerald David, Ng Tin Wai Terry, Raghavan Manoj

机构信息

Queen Elizabeth Hospital and University of Birmingham Birmingham UK.

Patient representative.

出版信息

EJHaem. 2021 May 14;2(3):394-399. doi: 10.1002/jha2.220. eCollection 2021 Aug.

DOI:10.1002/jha2.220
PMID:34226902
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8242739/
Abstract

The ongoing COVID-19 pandemic has presented numerous challenges to the provision of patient care within hematology. We undertook a questionnaire-based study investigating the experiences and opinions of patients with chronic myeloid leukemia (CML) in the UK in relation to the different models of follow-up care received during the pandemic. One hundred fifty-four patients completed the online questionnaire. Only 19% of patients had experienced remote clinics prior to the pandemic compared with 91% afterward. After having experience of remote clinics, the proportion of patients who were positive about the remote clinic concept increased from 34% to 52% (P < .05). However, when asked to compare their experiences with face to face versus remote clinics, 48% preferred face-to-face clinics compared with 17% preferring remote clinics (35% expressed no preference). During the pandemic, frequency of blood tests was unchanged for 71% of patients, although they were performed in a number of different locations. The majority of patients (57%) had medication delivered to their home, with a small number (8%) having difficulty obtaining their medication. In terms of future models of care, 72% of patients were in favor of building remote appointments into the clinic model with 61% expressing a preference for a mixture of remote and face-to-face appointments. There was also interest in greater utilization of primary care for blood testing. Our findings should help optimize future models of care for CML patients.

摘要

持续的 COVID-19 大流行给血液学领域的患者护理带来了诸多挑战。我们开展了一项基于问卷调查的研究,调查了英国慢性髓性白血病(CML)患者在大流行期间接受不同随访护理模式的经历和看法。154 名患者完成了在线问卷。与大流行之后 91% 的患者经历过远程诊所相比,大流行之前只有 19% 的患者有此经历。在体验过远程诊所后,表示对远程诊所概念持积极态度的患者比例从 34% 增至 52%(P < 0.05)。然而,当被要求比较面对面诊所和远程诊所的体验时,48% 的患者更喜欢面对面诊所,相比之下,只有 17% 的患者更喜欢远程诊所(35% 表示无偏好)。在大流行期间,71% 的患者血液检测频率未变,尽管检测是在多个不同地点进行的。大多数患者(57%)的药物被送到家中,少数患者(8%)在获取药物方面有困难。就未来护理模式而言,72% 的患者赞成在诊所模式中纳入远程预约,61% 的患者表示更喜欢远程预约和面对面预约相结合的方式。患者们还对更多利用初级护理进行血液检测感兴趣。我们的研究结果应有助于优化未来 CML 患者的护理模式。