Tashkandi Emad, BaAbdullah M, Zeeneldin Ahmed, AlAbdulwahab A, Elemam Omima, Elsamany S, Alfayez M, Dabash Y, Khayat E, Hassanin Fayza, Abdulhameed Rasha, Jazieh Abdul Rahman
Oncology Center, King Abdullah Medical City, Makkah, Saudi Arabia.
College of Medicine, Umm AlQura University, Makkah, Saudi Arabia.
Patient Prefer Adherence. 2020 Jul 20;14:1205-1212. doi: 10.2147/PPA.S263022. eCollection 2020.
During curfew, patients are self-isolated at home and worried. Patient-doctor interactions may be disrupted and therefore need to be replaced by alternative effective communication methods.
To describe the preferences of cancer patients with respect to communication methods and the use of patient-accessible electronic health records (PAEHRs). To record the impact on cancer patients during the COVID-19 pandemic and the knowledge and attitude of the patients towards it.
We created a self-administered electronic survey that was piloted and evaluated for its clinical relevance. Using convenient sampling methods, we surveyed the cancer patients in our Oncology Center.
We received 385 responses between April 15 and April 30, 2020. The preferred method for communication was a phone call with a 92% response rate followed by the electronic patient portal, mobile application, telemedicine and text message in 75%, 76%, 73%, and 72%, respectively. The majority (97%) preferred the use of PAEHRs for appointments, 95% for drug delivery and to view laboratory tests, and 92% in requesting medical reports. In our survey, 22% of patients with cancer reported that their medical cancer care had not been affected by COVID-19. They reported that trusted sources of information during COVID-19 included the Ministry of Health with 98% and doctors with 94%. Sixty-one percent know that they are more susceptible to COVID-19 infection and 91% of respondents supported the notion of digital transformation in the caring of cancer patients.
Our study revealed a general acceptance of patients to telecommunication as substitute to in-person interaction with their physicians. Interaction between cancer patients and health care providers should not be disrupted but should be augmented with more effective platforms to improve health care outcomes.
在宵禁期间，患者在家中自我隔离且忧心忡忡。医患互动可能会受到干扰，因此需要用其他有效的沟通方式取而代之。
描述癌症患者对沟通方式以及对患者可访问的电子健康记录（PAEHRs）使用的偏好。记录在新冠疫情期间对癌症患者的影响以及患者对其的认知和态度。
我们创建了一份自填式电子调查问卷，并对其临床相关性进行了试点和评估。采用便利抽样方法，对我们肿瘤中心的癌症患者进行了调查。
在2020年4月15日至4月30日期间，我们收到了385份回复。首选的沟通方式是电话，回复率为92%，其次是电子患者门户、移动应用程序、远程医疗和短信，回复率分别为75%、76%、73%和72%。大多数人（97%）倾向于使用PAEHRs进行预约，95%用于药物配送和查看实验室检查结果，92%用于索取医疗报告。在我们的调查中，22%的癌症患者报告称其癌症医疗护理未受新冠疫情影响。他们报告称，在新冠疫情期间，可靠的信息来源包括卫生部（98%）和医生（94%）。61%的人知道他们更容易感染新冠病毒，91%的受访者支持在癌症患者护理中进行数字转型的理念。
我们的研究表明，患者普遍接受将电信作为与医生面对面互动的替代方式。癌症患者与医疗服务提供者之间的互动不应中断，而应通过更有效的平台加以增强，以改善医疗护理效果。
