Chu Shin Ying, Kassim Siti Nur Zafirah Binti, Gan Chun Hong, Fierro Veronica, Chan Caryn Mei Hsien, Hersh Deborah
Faculty of Health Sciences, Centre for Healthy Ageing and Wellness (H-CARE), Speech Sciences Programme, Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia.
Faculty of Health Sciences, Centre for Rehabilitation and Special Needs, Clinical Psychology and Behavioral Health Programme , Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia.
J Autism Dev Disord. 2023 Feb;53(2):795-807. doi: 10.1007/s10803-021-05184-5. Epub 2021 Jul 10.
Sibling relationships remain understudied in typically developing adolescents who have siblings with autism spectrum disorder (ASD). This study explored the lived experiences and perceptions of adolescents who have a brother or a sister with a diagnosis of ASD using semi-structured interviews. Using thematic analysis, the participants reported having difficulties communicating with their siblings. Feeling a mixture of emotions was common when interacting with their siblings with ASD and emotional self-regulation was a typical coping strategy utilized by these adolescents. Despite the challenges, having a sibling with ASD led to closer relationships between the siblings. These findings offer insights into these adolescents' needs and how they may be best supported, informing the practice of speech-language pathology and other health professions.
在患有自闭症谱系障碍（ASD）兄弟姐妹的发育正常的青少年中，同胞关系仍未得到充分研究。本研究通过半结构化访谈，探讨了那些有被诊断患有ASD的兄弟姐妹的青少年的生活经历和看法。通过主题分析，参与者报告称与他们的兄弟姐妹沟通存在困难。与患有ASD的兄弟姐妹互动时，他们通常会有复杂的情绪，情绪自我调节是这些青少年常用的应对策略。尽管存在挑战，但有一个患有ASD的兄弟姐妹使他们之间的关系更加亲密。这些发现为了解这些青少年的需求以及如何给予他们最佳支持提供了见解，为言语病理学和其他健康专业的实践提供了参考。
