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女性自闭症谱系障碍(ASD)体验的定性探索。

A Qualitative Exploration of the Female Experience of Autism Spectrum Disorder (ASD).

机构信息

Social, Genetic and Developmental Psychiatry Centre, Institute of Psychiatry, Psychology and Neuroscience, King's College London, 16 De Crespigny Park, Denmark Hill, London, SE5 8AF, UK.

出版信息

J Autism Dev Disord. 2019 Jun;49(6):2389-2402. doi: 10.1007/s10803-019-03906-4.

Abstract

Autism spectrum disorder is thought to be a predominantly male diagnosis, however recent research suggests a smaller gender disparity in prevalence than previously assumed. Accounts of the female experience of autism are important to help reduce likely male-bias in current understanding and recognition of autism. Eighteen autistic females and four mothers of autistic females took part in discussions with a topic guide around diagnosis, impact and coping. A thematic analysis was conducted. Five themes were identified: fitting in the with the norm, potential obstacles for autistic women and girls, negative aspects of autism, the perspective of others, and positive aspects of having autism. We hope that greater understanding of the experiences of autistic females may lead to improved awareness, diagnosis and support for women and girls.

摘要

自闭症谱系障碍被认为主要是男性的诊断,但最近的研究表明,其流行率的性别差异比之前认为的要小。了解女性自闭症患者的经历对于减少当前对自闭症的理解和认识中可能存在的男性偏见很重要。18 名自闭症女性和 4 名自闭症女性的母亲参与了围绕诊断、影响和应对的讨论,使用主题指南进行了主题分析。确定了五个主题:符合常态、自闭症女性和女孩的潜在障碍、自闭症的消极方面、他人的观点和自闭症的积极方面。我们希望对自闭症女性的经历有更多的了解,可能会导致提高对女性和女孩的认识、诊断和支持。

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Challenges of Females with Autism: A Parental Perspective.自闭症女性的挑战:父母的视角。
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