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女性自闭症谱系障碍(ASD)体验的定性探索。

A Qualitative Exploration of the Female Experience of Autism Spectrum Disorder (ASD).

机构信息

Social, Genetic and Developmental Psychiatry Centre, Institute of Psychiatry, Psychology and Neuroscience, King's College London, 16 De Crespigny Park, Denmark Hill, London, SE5 8AF, UK.

出版信息

J Autism Dev Disord. 2019 Jun;49(6):2389-2402. doi: 10.1007/s10803-019-03906-4.

DOI:10.1007/s10803-019-03906-4
PMID:30790191
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6546643/
Abstract

Autism spectrum disorder is thought to be a predominantly male diagnosis, however recent research suggests a smaller gender disparity in prevalence than previously assumed. Accounts of the female experience of autism are important to help reduce likely male-bias in current understanding and recognition of autism. Eighteen autistic females and four mothers of autistic females took part in discussions with a topic guide around diagnosis, impact and coping. A thematic analysis was conducted. Five themes were identified: fitting in the with the norm, potential obstacles for autistic women and girls, negative aspects of autism, the perspective of others, and positive aspects of having autism. We hope that greater understanding of the experiences of autistic females may lead to improved awareness, diagnosis and support for women and girls.

摘要

自闭症谱系障碍被认为主要是男性的诊断,但最近的研究表明,其流行率的性别差异比之前认为的要小。了解女性自闭症患者的经历对于减少当前对自闭症的理解和认识中可能存在的男性偏见很重要。18 名自闭症女性和 4 名自闭症女性的母亲参与了围绕诊断、影响和应对的讨论,使用主题指南进行了主题分析。确定了五个主题:符合常态、自闭症女性和女孩的潜在障碍、自闭症的消极方面、他人的观点和自闭症的积极方面。我们希望对自闭症女性的经历有更多的了解,可能会导致提高对女性和女孩的认识、诊断和支持。

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J Autism Dev Disord. 2019 Jun;49(6):2389-2402. doi: 10.1007/s10803-019-03906-4.
2
Maternal experience raising girls with autism spectrum disorder: a qualitative study.养育患有自闭症谱系障碍女孩的母亲经历:一项定性研究。
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本文引用的文献

1
Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults.理解自闭症成年人掩饰行为的原因、情境和代价。
J Autism Dev Disord. 2019 May;49(5):1899-1911. doi: 10.1007/s10803-018-03878-x.
2
Girls with social deficits and learning problems: Autism, atypical Asperger syndrome or a variant of these conditions.有社交缺陷和学习问题的女孩:自闭症、非典型阿斯伯格综合征或这些病症的变体。
Eur Child Adolesc Psychiatry. 1992 Apr;1(2):89-99. doi: 10.1007/BF02091791.
3
Challenges of Females with Autism: A Parental Perspective.自闭症女性的挑战:父母的视角。
J Autism Dev Disord. 2018 Apr;48(4):1301-1310. doi: 10.1007/s10803-017-3341-8.
4
A qualitative study of the service experiences of women with autism spectrum disorder.一项关于自闭症谱系障碍女性服务体验的定性研究。
Autism. 2018 Nov;22(8):928-937. doi: 10.1177/1362361317702561. Epub 2017 Sep 15.
5
What Is the Male-to-Female Ratio in Autism Spectrum Disorder? A Systematic Review and Meta-Analysis.自闭症谱系障碍中男性与女性的比例是多少?一项系统综述和荟萃分析。
J Am Acad Child Adolesc Psychiatry. 2017 Jun;56(6):466-474. doi: 10.1016/j.jaac.2017.03.013. Epub 2017 Apr 5.
6
"Putting on My Best Normal": Social Camouflaging in Adults with Autism Spectrum Conditions.“展现我最佳的常态”:自闭症谱系障碍成年人的社交伪装
J Autism Dev Disord. 2017 Aug;47(8):2519-2534. doi: 10.1007/s10803-017-3166-5.
7
Maternal experience raising girls with autism spectrum disorder: a qualitative study.养育患有自闭症谱系障碍女孩的母亲经历:一项定性研究。
Child Care Health Dev. 2017 Jul;43(4):536-545. doi: 10.1111/cch.12470. Epub 2017 May 2.
8
Commentary: Critical considerations for studying low-functioning autism.评论:研究低功能自闭症的关键考量因素。
J Child Psychol Psychiatry. 2017 Apr;58(4):436-438. doi: 10.1111/jcpp.12720.
9
'I was just so different': The experiences of women diagnosed with an autism spectrum disorder in adulthood in relation to gender and social relationships.“我就是与众不同”:成年后被诊断出患有自闭症谱系障碍的女性在性别和社会关系方面的经历。
Autism. 2017 Aug;21(6):661-669. doi: 10.1177/1362361316687987. Epub 2017 Mar 22.
10
The art of camouflage: Gender differences in the social behaviors of girls and boys with autism spectrum disorder.伪装的艺术:自闭症谱系障碍儿童的社会行为中的性别差异。
Autism. 2017 Aug;21(6):678-689. doi: 10.1177/1362361316671845. Epub 2016 Nov 29.