Patient-Reported Outcomes, Value & Experience (PROVE) Center, Brigham and Women's Hospital, Boston, USA.
Department of Plastic Surgery, Catharina Hospital Eindhoven, Eindhoven, The Netherlands.
Qual Life Res. 2022 Feb;31(2):579-587. doi: 10.1007/s11136-021-02934-x. Epub 2021 Jul 20.
Daily micro-surveys, or the high-frequency administration of patient-reported outcome measures (PROMs), may provide real-time, unbiased assessments of health-related quality of life (HRQoL). We evaluated the feasibility and accuracy of daily micro-surveys using a smartphone platform among patients recovering from cancer surgery.
In a prospective study (2017-2019), patients undergoing cancer surgery downloaded a smartphone application that administered daily micro-surveys comprising five randomly selected items from the Short Form-36 (SF-36). Micro-surveys were administered without replacement until the entire SF-36 was administered weekly. The full-length SF-36 was also administered preoperatively and 4, 12, and 24 weeks postoperatively. We assessed response and completion rates between the micro-surveys and full-length SF-36, as well as agreement of responses using Bland-Altman (B&A) analyses.
Ninety-five patients downloaded the application and were followed for a mean of 131 days [SD ± 85]. Response rates for the full-length SF-36 and micro-surveys was 76% [95%CI 69, 83], and 34% [95%CI 26, 39]. Despite lower response rates, more SF-36 surveys were collected using the daily micro-surveys compared to the intermittent full-length SF-36 (9.9 [95%CI 8.4, 12.6] vs. 3.0 [95%CI 2.8, 3.3], respectively). B&A analyses demonstrated lack of agreement between micro-surveys and SF-36. However, agreement improved with higher micro-survey completion rate. Eighty-five percent of participants reported that daily micro-surveys were not burdensome.
This study suggests that collection of daily micro-surveys among patients recovering from cancer surgery is feasible using smartphones in the early postoperative period. Future implementation of daily micro-surveys may more granularly describe momentary HRQoL changes through a greater volume of self-reported survey data.
每日微调查，或高频管理患者报告的结果测量（PROMs），可能提供健康相关生活质量（HRQoL）的实时、无偏评估。我们评估了使用智能手机平台在癌症手术后康复的患者中进行日常微调查的可行性和准确性。
在一项前瞻性研究中（2017-2019 年），接受癌症手术的患者下载了一个智能手机应用程序，该应用程序每天对五个随机选择的短表单-36（SF-36）项目进行微调查。微调查在每周完全管理 SF-36 之前进行，没有替代。SF-36 全长也在术前和术后 4、12 和 24 周进行管理。我们评估了微调查和全长 SF-36 之间的响应和完成率，以及使用 Bland-Altman（B&A）分析的响应一致性。
95 名患者下载了该应用程序，并平均随访了 131 天[SD±85]。全长 SF-36 和微调查的响应率分别为 76%[95%CI 69,83]和 34%[95%CI 26,39]。尽管响应率较低，但使用每日微调查收集的 SF-36 调查数量多于间歇性全长 SF-36（分别为 9.9[95%CI 8.4,12.6]和 3.0[95%CI 2.8,3.3]）。B&A 分析表明，微调查和 SF-36 之间缺乏一致性。然而，随着微调查完成率的提高，一致性得到改善。85%的参与者表示，每日微调查并不繁琐。
本研究表明，在癌症手术后的早期阶段，使用智能手机收集癌症手术后康复患者的日常微调查是可行的。未来实施每日微调查可能通过更多的自我报告调查数据更细致地描述即时的 HRQoL 变化。
