Surgical Care Science, Department of Molecular medicine and Surgery, Karolinska Institutet, Karolinska University Hospital, 171 76, Stockholm, Sweden.
Surgical Care Science, Department of Molecular medicine and Surgery, Karolinska Institutet, Karolinska University Hospital, 171 76, Stockholm, Sweden; Department of Anaesthesiology and Intensive Care, Södersjukhuset, Stockholm, Sweden; Department of Clinical Science and Education, Södersjukhuset, Karolinska Institutet, Stockholm, Sweden.
Eur J Oncol Nurs. 2021 Oct;54:101983. doi: 10.1016/j.ejon.2021.101983. Epub 2021 May 21.
Little is known about how patient's experience-based knowledge and advice after oesophageal cancer surgery may contribute to the understanding of how to improve HRQOL for future patients. In this study the advice that patients who were surgically treated for oesophageal cancer would like to share to future peers, based on their lived experiences were examined.
A qualitative inductive content analysis was used to analyse one open-ended question from 63 transcribed interviews performed during 2019, within the nationwide Swedish prospective cohort study OSCAR (Oesophageal Surgery on Cancer patients - Adaption and Recovery study).
Patients had a broad range of advice to give from their experiences of oesophageal cancer surgery and recovery thereafter. Based on the analysis, three main categories were identified on the advice they wanted to pass on to future peers; health promoting advice, acknowledging the new situation, and advice on embracing support from others. The importance of being physically active, to maintain a positive mind set and to embrace support from both health care professionals as well as family and friends were central experiences that former patients wanted to share with their future peers.
This study sheds a light on the experiences that patients who have undergone oesophageal cancer surgery have, and what advice they would give to future patients going through the same procedure. The analysis reveals that patients have a variety of advice from their experiences that they want to pass on to future patients. Further studies are needed in order to examine how these advice are received by and can benefit future patients, as well as the pathways of how peer advice is best communicated.
关于食管癌手术后患者基于经验的知识和建议如何有助于了解如何提高未来患者的健康相关生活质量（HRQOL），目前知之甚少。本研究基于患者的生活经历，考察了接受食管癌手术治疗的患者希望与未来患者分享的建议。
使用定性归纳内容分析法分析了 2019 年在全国性瑞典前瞻性队列研究 OSCAR（食管癌手术后患者的适应和恢复研究）中进行的 63 次转录访谈中的一个开放式问题。
患者根据其食管癌手术和随后康复的经验，提供了广泛的建议。基于分析，确定了三个主要类别：促进健康的建议、承认新情况和接受他人支持的建议。患者希望与未来的同行分享的核心经验是积极锻炼身体、保持积极的心态，并接受来自医疗保健专业人员以及家人和朋友的支持。
本研究揭示了接受过食管癌手术的患者的经历，以及他们希望向正在经历相同手术的未来患者提供的建议。分析表明，患者从自己的经验中获得了各种建议，希望与未来的患者分享。需要进一步研究，以探讨这些建议如何被未来患者接受并使他们受益，以及如何最好地传达同行建议的途径。
