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《世界范围内慢性肾脏病患者的权利:巴西、印度、葡萄牙、南非和尼日利亚的法律视角与挑战》

The Rights of Patients with Chronic Kidney Disease in the World: Legal Perspectives and Challenges in Brazil, India, Portugal, South Africa, and Nigeria.

机构信息

Constitutional Law Postgraduate Program, University of Fortaleza, Fortaleza, Brazil.

ILS Law College, Pune, India.

出版信息

Contrib Nephrol. 2021;199:322-338. doi: 10.1159/000517722. Epub 2021 Aug 3.

Abstract

Clinical Background: Chronic kidney disease (CKD) is a condition that causes important limitations to patients' lives. The limitations imposed as a result of the disease end up hampering the exercise of citizenship by individuals, including work and daily activities. Epidemiology: The prevalence of CKD in Brazil, India, Nigeria, Portugal, and South Africa is, respectively, 5.8-25.2, 13-17.2, 7.8-23.5, 6.1-20.7, and 6.4-17.3%, and is higher among the most disadvantaged populations. Challenges: The present study intends to make an intersection between health sciences, considering the reality faced by the patient with CKD, and the legal perspectives regarding the protective dimension of the right to healthcare and the access of these individuals to a better quality of life. Despite differences in size, population, and human development, there are some similarities among countries in the normative approach regarding the right to healthcare of patients with CKD. The study was developed based on an analysis carried out by legal scholars and specialists from Brazil, India, Portugal, South Africa, and Nigeria. Not only the texts of constitutions and laws were examined, but also how courts interpret and apply them. It was identified that the impact of kidney disease is also associated with human development issues. Adequate access to renal replacement therapy is not always found in the countries examined as well as to kidney transplants. It was observed that the constitutional protection of the right to healthcare is present in some constitutions such as those of Brazil, Portugal, and South Africa. Specific legislation that regulates access to medicines, dialysis, and kidney transplantation was analyzed. Financial aid and right to social assistance and social insurance benefits guaranteed by law are found only in some countries. However, for legal provisions to become effective, it is still necessary to overcome sociocultural and budgetary issues. Prevention and Treatment: Public policies directed to CKD patients, ensuring access to information, preventive measures, and treatment, should be elaborated to answer the increasing demand for renal replacement therapy, including dialysis and transplant.

摘要

临床背景

慢性肾脏病(CKD)会导致患者的生活受到严重限制。该疾病导致的限制会妨碍个人行使公民权利,包括工作和日常活动。

流行病学

巴西、印度、尼日利亚、葡萄牙和南非的 CKD 患病率分别为 5.8-25.2%、13-17.2%、7.8-23.5%、6.1-20.7%和 6.4-17.3%,在最弱势群体中更高。

挑战

本研究旨在将健康科学与 CKD 患者所面临的现实相结合,并从法律角度探讨医疗保健保护维度和这些患者获得更高生活质量的权利,考虑到这一挑战。尽管各国在规模、人口和人类发展方面存在差异,但在 CKD 患者的医疗保健权利规范方法方面存在一些相似之处。该研究基于巴西、印度、葡萄牙、南非和尼日利亚的法律学者和专家进行的分析。不仅审查了宪法和法律文本,还审查了法院如何解释和适用这些文本。研究发现,肾脏疾病的影响也与人类发展问题有关。在所审查的国家中,并非总能获得适当的肾脏替代治疗,包括肾移植。研究发现,宪法对医疗保健权利的保护在巴西、葡萄牙和南非等国的宪法中有所体现。分析了规范药物、透析和肾移植准入的具体立法。只有在一些国家才发现提供经济援助以及法律保障的社会援助和社会保险福利。然而,为了使法律规定生效,仍需克服社会文化和预算问题。

预防和治疗

应制定针对 CKD 患者的公共政策,确保获得信息、预防措施和治疗,以满足对肾脏替代治疗(包括透析和移植)的需求。

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