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与健康相关的生活质量、家庭冲突和注射恐惧:1型糖尿病儿童和青少年及其母亲之间的认知差异。

Health-Related Quality of Life, Family Conflicts and Fear of Injecting: Perception Differences between Preadolescents and Adolescents with Type 1 Diabetes and Their Mothers.

作者信息

Tremolada Marta, Cusinato Maria, Bonichini Sabrina, Fabris Arianna, Gabrielli Claudia, Moretti Carlo

机构信息

Department of Development and Social Psychology, University of Padua, 35131 Padova, Italy.

Pediatric Diabetes Unit, Department of Women's and Children's Health, Azienda Ospedale Università di Padova, 35127 Padova, Italy.

出版信息

Behav Sci (Basel). 2021 Jul 6;11(7):98. doi: 10.3390/bs11070098.

DOI:10.3390/bs11070098
PMID:34356715
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8301019/
Abstract

Good management of diabetes requires at the same time self-regulation behaviour and a balanced involvement of family components. This cross-sectional study's aims were: understanding fear of injections and perceptions of family conflicts in preadolescents and adolescents with type 1 diabetes mellitus and their mothers, comparing their perceptions, and identifying the risk factors impacting patients' quality of life. Eligibility criteria were: treatment for diabetes mellitus type I, currently aged 10-18 years, attending the hospital for annual hospital follow-ups. Exclusion criteria were: intellectual disabilities, inability to complete questionnaires alone and neuropsychiatric illness with active pharmacotherapy. The study design was cross-sectional. Participants were one hundred and two patients (Mean age = 14.6, SD = 2.4; age range = 10-19 years; Females = 52 and Males = 50) and their mothers (Mean age = 46.9, SD = 6.2, age range = 27-63 years), who filled in self and proxy-report questionnaires (N total= 204). The results showed that 20% of patients and 14.7% of their mothers reported clinical scores for fear of self-injection and blood testing. The mothers reported lower fear of injecting and higher family conflicts compared with the patients. Age, fear of injecting and family conflicts were significantly associated with patients' quality of life perceptions. Clinical considerations and recommendations are given based on the empirical results.

摘要

糖尿病的良好管理需要同时具备自我调节行为以及家庭各成员的均衡参与。这项横断面研究的目的是:了解1型糖尿病青少年及其母亲对注射的恐惧和对家庭冲突的看法,比较他们的看法,并确定影响患者生活质量的风险因素。纳入标准为:患有I型糖尿病,目前年龄在10 - 18岁之间,到医院进行年度随访。排除标准为:智力残疾、无法独自完成问卷以及正在接受积极药物治疗的神经精神疾病。研究设计为横断面研究。参与者为102名患者(平均年龄 = 14.6,标准差 = 2.4;年龄范围 = 10 - 19岁;女性 = 52名,男性 = 50名)及其母亲(平均年龄 = 46.9,标准差 = 6.2,年龄范围 = 27 - 63岁),他们填写了自我报告和代理报告问卷(总共204份)。结果显示,20%的患者及其14.7%的母亲报告了对自我注射和血液检测的临床恐惧评分。与患者相比,母亲报告的注射恐惧较低,家庭冲突较高。年龄、注射恐惧和家庭冲突与患者的生活质量认知显著相关。基于实证结果给出了临床考量和建议。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf8b/8301019/d0b9e968e0b1/behavsci-11-00098-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf8b/8301019/d0b9e968e0b1/behavsci-11-00098-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf8b/8301019/d0b9e968e0b1/behavsci-11-00098-g001.jpg

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