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探讨儿科癌症治疗目标的沟通策略。

Broaching goals-of-care conversations in advancing pediatric cancer.

机构信息

Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.

Department of Public Health, University of Memphis, Memphis, Tennessee, USA.

出版信息

Pediatr Blood Cancer. 2021 Oct;68(10):e29270. doi: 10.1002/pbc.29270. Epub 2021 Aug 6.

DOI:10.1002/pbc.29270
PMID:34357679
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8422283/
Abstract

Broaching conversations about goals of care can be difficult for clinicians. Presently, the communication strategies used by pediatric oncologists to approach goals of care conversations are not well understood. We recorded disease re-evaluation conversations between pediatric oncologists, patients, and parents, capturing 141 conversations (∼2400 minutes) for 17 patients with advancing illness across the study period. We conducted content analysis to identify strategies for broaching goals-of-care conversations and found five distinct communication approaches, which were not mutually exclusive. Further research is needed to explore patient and family views on best practices for broaching discussions about goals of care.

摘要

与临床医生探讨医疗目标可能具有挑战性。目前,儿科肿瘤医生在进行医疗目标对话时使用的沟通策略尚不清楚。我们记录了儿科肿瘤医生、患者和家长之间的疾病再评估对话,在研究期间共记录了 17 名病情加重的患者的 141 次对话(约 2400 分钟)。我们进行了内容分析,以确定探讨医疗目标对话的策略,发现了五种不同的沟通方法,它们并非互斥。需要进一步研究以探讨患者和家属对探讨医疗目标的最佳实践的看法。

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本文引用的文献

1
Conflicting goals and obligations: Tensions affecting communication in pediatric oncology.冲突的目标和义务:影响儿科肿瘤学沟通的紧张关系。
Patient Educ Couns. 2022 Jan;105(1):56-61. doi: 10.1016/j.pec.2021.05.003. Epub 2021 May 7.
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Prognostic Communication Between Oncologists and Parents of Children With Advanced Cancer.肿瘤医生与晚期癌症患儿父母之间的预后沟通。
Pediatrics. 2021 Jun;147(6). doi: 10.1542/peds.2020-044503. Epub 2021 May 5.
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Longitudinal investigation of prognostic communication: Feasibility and acceptability of studying serial disease reevaluation conversations in children with high-risk cancer.纵向预后沟通研究:在高危癌症患儿中研究系列疾病再评估对话的可行性和可接受性。
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REMAP: A Framework for Goals of Care Conversations.REMAP:照护目标对话框架
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Helping parents make and survive end of life decisions for their seriously ill child.帮助父母为病重的孩子做出并应对临终决策。
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"Trying to be a good parent" as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children.通过对那些为子女做出第一阶段、临终护理和复苏决定的父母进行访谈所定义的“努力成为好父母”。
J Clin Oncol. 2009 Dec 10;27(35):5979-85. doi: 10.1200/JCO.2008.20.0204. Epub 2009 Oct 5.
10
Opening the black box: how do physicians communicate about advance directives?打开“黑匣子”:医生如何就预先医疗指示进行沟通?
Ann Intern Med. 1998 Sep 15;129(6):441-9. doi: 10.7326/0003-4819-129-6-199809150-00003.