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讲授1型糖尿病:通过本科研究课程促进利益相关者参与生物医学职业发展

Teaching Type 1 Diabetes: Creating Stakeholder Engagement in Biomedical Careers Through Undergraduate Research Curriculum.

作者信息

Walker Ashby F, Atkinson Mark A, Lee Alexandra M, Aulisio Gina, Brusko Todd M, Haller Michael J, Schatz Desmond A

机构信息

University of Florida Diabetes Institute, University of Florida, PO Box 100309, Gainesville, FL 32610 USA.

Department of Health Services Research, Management and Policy, University of Florida, PO Box 100195, Gainesville, FL 32610 USA.

出版信息

Med Sci Educ. 2019 Dec 11;30(1):69-73. doi: 10.1007/s40670-019-00877-0. eCollection 2020 Mar.

DOI:10.1007/s40670-019-00877-0
PMID:34457640
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8368109/
Abstract

Undergraduate students living with chronic diseases attending universities where major biomedical research takes place are critical stakeholders in these programs, yet they often remain sequestered from them. A directed research curriculum about Type 1 Diabetes (T1D) was developed to better engage undergraduate students with personal connections to the disease in a large medical university setting world renowned for its research in this area. The course had the following student learning outcomes: (1) gain knowledge of major T1D research programs; (2) exposure to careers in T1D research and clinical care; and (3) recognize bioethical issues in T1D research.

摘要

患有慢性病的本科生就读于开展主要生物医学研究的大学,他们是这些项目中的关键利益相关者,但往往与这些项目隔绝。在一所因在该领域的研究而闻名于世的大型医科大学环境中,开发了一门关于1型糖尿病(T1D)的定向研究课程,以更好地让与该疾病有个人关联的本科生参与进来。该课程有以下学生学习成果:(1)了解主要的T1D研究项目;(2)接触T1D研究和临床护理方面的职业;(3)认识T1D研究中的生物伦理问题。

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本文引用的文献

1
The science of stakeholder engagement in research: classification, implementation, and evaluation.研究中利益相关者参与的科学:分类、实施与评估。
Transl Behav Med. 2017 Sep;7(3):486-491. doi: 10.1007/s13142-017-0495-z.
2
Type 1 diabetes prevalence increasing globally and regionally: the role of natural selection and life expectancy at birth.1 型糖尿病的全球和区域性流行率上升:自然选择和出生时预期寿命的作用。
BMJ Open Diabetes Res Care. 2016 Mar 2;4(1):e000161. doi: 10.1136/bmjdrc-2015-000161. eCollection 2016.
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The American Society for Clinical Pathology's 2014 vacancy survey of medical laboratories in the United States.美国临床病理学会 2014 年对美国医疗实验室的空缺调查。
Am J Clin Pathol. 2015 Sep;144(3):432-43. doi: 10.1309/AJCPN7G0MXMSTXCD.
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The 2015 standards for diabetes care: maintaining a patient-centered approach.2015年糖尿病护理标准:坚持以患者为中心的方法。
Ann Intern Med. 2015 Jun 2;162(11):785-6. doi: 10.7326/M15-0385.
5
Experiences of health care transition voiced by young adults with type 1 diabetes: a qualitative study.1型糖尿病青年成人的医疗保健过渡经历:一项定性研究。
Adolesc Health Med Ther. 2014 Oct 20;5:191-8. doi: 10.2147/AHMT.S67943. eCollection 2014.
6
The clinical endocrinology workforce: current status and future projections of supply and demand.临床内分泌学专业人员队伍:供需现状及未来预测
J Clin Endocrinol Metab. 2014 Sep;99(9):3112-21. doi: 10.1210/jc.2014-2257. Epub 2014 Jun 18.
7
Clinical and demographic risk factors associated with mortality during early adulthood in a population-based cohort of childhood-onset type 1 diabetes.在一个基于人群的儿童期发病的1型糖尿病队列中,与成年早期死亡率相关的临床和人口统计学风险因素。
Diabet Med. 2014 Dec;31(12):1550-8. doi: 10.1111/dme.12522. Epub 2014 Jul 16.
8
Challenges contributing to disrupted transition from paediatric to adult diabetes care in young adults with type 1 diabetes.1型糖尿病青年成人从儿科向成人糖尿病护理过渡中断的相关挑战。
Diabet Med. 2014 Dec;31(12):1615-24. doi: 10.1111/dme.12485. Epub 2014 May 26.
9
Early adolescent relationship predictors of emerging adult outcomes: youth with and without type 1 diabetes.青少年早期关系对成年初期结果的预测因素:患有和未患有1型糖尿病的青少年
Ann Behav Med. 2014 Jun;47(3):270-9. doi: 10.1007/s12160-013-9552-0.
10
Relationships hold the key to trustworthy and productive translational science: recommendations for expanding community engagement in biomedical research.关系是实现可信赖和富有成效的转化科学的关键:扩大社区参与生物医学研究的建议。
Clin Transl Sci. 2013 Aug;6(4):310-3. doi: 10.1111/cts.12022. Epub 2013 Jan 14.