Ryll Bettina
Melanoma Patient Network Europe, 75597, Uppsala, Schweden.
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2021 Oct;64(10):1207-1212. doi: 10.1007/s00103-021-03421-x. Epub 2021 Sep 3.
Digital applications, or "DiGA" in German, come with the promise of cost-effective interventions to improve patient care. Patient networks are frequently approached when DiGA are developed or need to be tested in a real-world setting. The network of those affected by melanoma, the "Melanoma Patient Network Europe" (MPNE), has thereby gained valuable insights into the fundamental characteristics of successful DiGA: a validated initial hypothesis, value generation through vertical integration, responsible financing models and data security.This article provides a patient advocacy perspective on the wider digital context in which DiGA exists and reflects on the disruptive potential as these applications enable patients to increasingly impose their preferences with regards to their own care.
数字应用程序,在德语中称为“DiGA”,有望提供具有成本效益的干预措施,以改善患者护理。在开发DiGA或需要在现实环境中进行测试时,经常会与患者网络进行接触。受黑色素瘤影响的人群网络,即“欧洲黑色素瘤患者网络”(MPNE),由此对成功的数字应用程序的基本特征有了宝贵的见解:经过验证的初始假设、通过垂直整合实现价值创造、负责任的融资模式和数据安全。本文从患者倡导的角度审视了DiGA所处的更广泛数字环境,并思考了这些应用程序使患者能够越来越多地对自身护理表达偏好所带来的潜在颠覆性影响。