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通过访谈和绘画展现中国 5-7 岁癌症患儿的治疗体验

The Experiences of Chinese Children 5- to 7-year-old during Cancer Treatment Reflected Through Interviews and Drawings.

机构信息

School of Nursing, 12478Fudan University, Shanghai, China.

Pediatric Hematology and Oncology Unit, 145601Children's Hospital of Fudan University, Shanghai, China.

出版信息

J Pediatr Hematol Oncol Nurs. 2022 Mar-Apr;39(2):88-98. doi: 10.1177/10434542211041919. Epub 2021 Sep 17.

DOI:10.1177/10434542211041919
PMID:34533397
Abstract

For children with cancer, the experience during treatment can be challenging. There is a limited number of studies on self-reported treatment experiences of younger Chinese children with cancer using qualitative methods. This study aimed at exploring the experience of Chinese children aged 5 to 7 years during cancer treatment reflected through interviews and drawings. This study used a descriptive qualitative design with the technique of "draw-and-tell." Participants were enrolled from the pediatric oncology inpatient department of one national children's medical center in China. They were asked to draw a picture of "your feelings in the hospital." An inductive content analysis approach was used. Twelve participants were enrolled (8 male, mean age 5.7 years). Four themes were established: (1) suffering from adverse treatment effects; (2) perceiving changed relationships; (3) being thankful for others; and (4) trying out coping strategies. Chinese children aged 5 to 7 years expressed multiple cancer treatment impacts. They appreciated others' support and had their own way to cope with treatment demands. The authors also extended the dynamic nature of using the "draw-and-tell" methodology. Study findings highlight the importance of inviting and hearing the voice of young children during their cancer treatment, with particular consideration of the influence of disease, treatment, child development, family dynamics, and culture.

摘要

对于癌症患儿来说,治疗过程充满挑战。目前,使用定性方法研究中国 5-7 岁癌症患儿自我报告的治疗体验的研究较少。本研究旨在通过访谈和绘画探索癌症患儿的治疗体验。本研究采用描述性定性设计和“绘画-讲述”技术。参与者来自中国一家国家儿童医院的儿科肿瘤住院病房。他们被要求画一幅“你在医院的感受”的画。采用归纳内容分析法。共纳入 12 名参与者(男 8 名,平均年龄 5.7 岁)。确立了四个主题:(1)遭受不良治疗效果的折磨;(2)感知关系的变化;(3)对他人表示感谢;(4)尝试应对策略。5-7 岁的中国儿童表达了多种癌症治疗的影响。他们感激他人的支持,也有自己应对治疗需求的方式。作者还扩展了使用“绘画-讲述”方法的动态性质。研究结果强调了在癌症治疗过程中邀请和倾听儿童声音的重要性,同时要特别考虑疾病、治疗、儿童发展、家庭动态和文化的影响。

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引用本文的文献

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Focusing on life rather than illness: the lived experience of children with life-threatening and life-limiting conditions-a qualitative study.关注生命而非疾病:患有危及生命和限制生命疾病儿童的生活体验——一项质性研究
Palliat Care Soc Pract. 2024 Nov 29;18:26323524241301431. doi: 10.1177/26323524241301431. eCollection 2024.
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Lived experiences with unmet supportive care needs in pediatric cancer: Perspective of Chinese children and their parents.儿童癌症患者未满足的支持性护理需求的生活经历:中国儿童及其父母的视角
Int J Nurs Sci. 2022 Sep 9;9(4):430-437. doi: 10.1016/j.ijnss.2022.09.001. eCollection 2022 Oct.
3
Using Communication Tools to Explore Young Siblings' Experiences of Having a Brother or Sister with Pediatric Palliative Care Needs.
运用沟通工具探索年幼兄弟姐妹拥有一名有儿科姑息治疗需求的兄弟姐妹的经历。
Children (Basel). 2022 Apr 29;9(5):641. doi: 10.3390/children9050641.