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Nausea, pain, fatigue, and multiple symptoms in hospitalized children with cancer.癌症住院儿童的恶心、疼痛、疲劳及多种症状。
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Changes in children's reports of symptom occurrence and severity during a course of myelosuppressive chemotherapy.骨髓抑制性化疗过程中儿童症状发生情况及严重程度报告的变化
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Feeling states: a new approach to understanding how children and adolescents with cancer experience symptoms.情感状态:理解癌症患儿及青少年如何体验症状的一种新方法。
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The qualitative content analysis process.定性内容分析过程。
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通过学龄期癌症患儿的绘画作品反映其上学日和患病日的比较。

Comparison of good days and sick days of school-age children with cancer reflected through their drawings.

作者信息

Linder Lauri A, Bratton Heather, Nguyen Anna, Parker Kori, Phinney Susanna

机构信息

University of Utah College of Nursing, Primary Children's Hospital, Salt Lake City, UT, USA.

University of Utah College of Nursing, Salt Lake City, UT, USA.

出版信息

Qual Life Res. 2017 Oct;26(10):2729-2738. doi: 10.1007/s11136-017-1621-6. Epub 2017 Jun 13.

DOI:10.1007/s11136-017-1621-6
PMID:28612308
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5711553/
Abstract

PURPOSE

Childhood cancer disrupts children's daily life experiences. Eliciting children's perspectives regarding their life experiences during cancer treatment can be challenging. The purpose of this study was to characterize elementary school-age children's "good days" and "sick days" through their drawings.

METHODS

This study used draw-and-tell interviews, a developmentally sensitive arts-based technique that supports children's recall and communication of information, facilitating a deeper understanding of children's personal interpretation and meaning of a given phenomenon of interest. Children were asked to draw pictures representing both a "good day" and a "sick day." Following completion of each drawing, research team members used a semi-structured interview guide to elicit children's explanations of their pictures. Content analysis techniques were used to descriptively characterize children's drawings followed by thematic analysis to identify commonalities.

RESULTS

Participants were 27 children 6.33-12.83 years of age (mean 9.16 years; SD = 1.9) receiving treatment for cancer. "Good day" and "sick day" pictures were similar with regards to the presence of the child, the inclusion of other individuals, and the type of art medium used. Children's pictures characterized "good days" as being happy, outside in sunny weather, and engaged in activities. In contrast, "sick days" were characterized as feeling sad, lying down or reclining, and experiencing illness-related symptoms.

CONCLUSIONS

Children's drawings illustrate their capacity to provide rich personal data related to their "good days" and "sick days." Incorporating arts-based strategies in the clinical setting may provide a child-centric strategy to understand the child's perspective and direct interventions.

摘要

目的

儿童癌症会扰乱儿童的日常生活体验。了解儿童在癌症治疗期间对其生活经历的看法可能具有挑战性。本研究的目的是通过绘画来描绘小学年龄段儿童的“好日子”和“生病日”。

方法

本研究采用绘画讲述访谈法,这是一种对发展敏感的基于艺术的技术,有助于儿童回忆和交流信息,从而更深入地理解儿童对特定感兴趣现象的个人解读和意义。要求儿童画出代表“好日子”和“生病日”的图片。在每幅画完成后,研究团队成员使用半结构化访谈指南来引出儿童对其画作的解释。采用内容分析技术对儿童绘画进行描述性特征分析,随后进行主题分析以确定共性。

结果

参与者为27名6.33 - 12.83岁(平均9.16岁;标准差 = 1.9)正在接受癌症治疗的儿童。“好日子”和“生病日”的图片在儿童的呈现、其他人物的包含以及所使用的艺术媒介类型方面相似。儿童的画作将“好日子”描绘为快乐、在阳光明媚的户外并参与活动。相比之下,“生病日”的特征是感到悲伤、躺下或斜倚以及出现与疾病相关的症状。

结论

儿童的绘画表明他们有能力提供与“好日子”和“生病日”相关的丰富个人数据。在临床环境中采用基于艺术的策略可能提供一种以儿童为中心的策略,以了解儿童的观点并指导干预措施。