Univ Lyon, Université Lumière Lyon 2, GATE UMR 5824, F-69130, Ecully, France.
Univ Lyon, Léon Bérard Cancer Center, GATE UMR 5824, F-69008, Lyon, France.
BMC Health Serv Res. 2021 Sep 21;21(1):995. doi: 10.1186/s12913-021-06935-x.
The demographic and social changes associated with population aging and the increasing incidence of chronic diseases underscore the importance of the role of informal carers. The number of informal carers is increasing and negative consequences associated with providing care, such as burnout, are known. However the influence of socioeconomic and psychological factors on the need for respite have not been well characterized to date. Informal care represents an essential component of health care systems and long-term care. The purpose of this study was to shed light on how the characteristics of informal carers affect the need for respite.
We used data from a nationally representative survey, Capacités Aides et Resources des Seniors (CARE - ménage), collected in 2015 by the National Institute for Statistics and Economic Studies (INSEE) and the Directorate for Research, Studies, Assessment and Statistics (DREES). The determinants of the need for respite among the characteristics of informal caregivers were explored using a probit model. To handle missing data, sensitivity analyses were performed using multiple imputations.
Our study included N = 4033 dyads of informal carers and care recipients. The mean age was 61 for carers. The majority of carers were female, married, the child of the care recipient. Almost 27% reported a need for respite. A worse health status, feeling of loneliness, having a lack of time for oneself and needing to provide more than 30 h of care per month very significantly increased the need for respite irrespective of whether or not the carer lived with the care recipient (p < 0.01). Providing care to other persons was likely to induce a greater need for respite (p < 0.01). Cohabitation of the informal carer and the care recipient was likely to increase the need for respite (p < 0.05). Conversely, however, being closely acquainted with the care recipient showed a reduced need for respite in comparison with that of carers who are married to their care recipient (p < 0.05).
These findings provide useful information for policymakers, physicians and other health professionals for reducing carers' risk of exhaustion and burnout and for referring carers to the relevant service, e.g. psychological intervention, respite care support, training support and education support.
人口老龄化和慢性病发病率上升带来的人口和社会变化,突显了非正式照顾者的作用的重要性。非正式照顾者的数量正在增加,而且众所周知,他们在提供照顾方面会产生负面影响,例如倦怠。然而,迄今为止,社会经济和心理因素对休息需求的影响尚未得到很好的描述。非正式护理是医疗保健系统和长期护理的重要组成部分。本研究的目的是阐明非正式护理者的特征如何影响休息需求。
我们使用了 2015 年由国家统计局(INSEE)和研究、评估和统计总局(DREES)收集的全国代表性调查 Capacités Aides et Resources des Seniors(CARE - ménage)的数据。使用概率模型探讨了非正式照顾者特征与休息需求之间的关系。为处理缺失数据,我们使用多重插补进行了敏感性分析。
我们的研究包括 4033 对非正式照顾者和照顾对象。照顾者的平均年龄为 61 岁。大多数照顾者是女性、已婚、是照顾对象的子女。近 27%的照顾者表示需要休息。健康状况较差、感到孤独、没有时间留给自己、每月需要提供超过 30 小时的护理,这些因素显著增加了休息需求,无论照顾者是否与照顾对象同住(p < 0.01)。照顾其他人更有可能增加休息需求(p < 0.01)。非正式照顾者与照顾对象同住可能会增加休息需求(p < 0.05)。然而,与与照顾对象结婚的照顾者相比,与照顾对象关系密切的照顾者对休息的需求较低(p < 0.05)。
这些发现为政策制定者、医生和其他卫生专业人员提供了有用的信息,以减少照顾者的疲惫和倦怠风险,并将照顾者转介到相关服务,例如心理干预、休息护理支持、培训支持和教育支持。