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真正的韧性:深入探究新冠疫情对身患复杂疾病儿童及其家庭的影响

True Resilience: A Look Inside COVID's Effect on Children with Medical Complexity and Their Families.

作者信息

Mitchell Sarah M

机构信息

Department of Pediatrics-Hospitalist Based Medicine, LaRabida Children's Hospital, 6501 S. Promotory Dr., Chicago, IL 60653 USA.

出版信息

Curr Pediatr Rep. 2021;9(4):171-177. doi: 10.1007/s40124-021-00254-9. Epub 2021 Oct 9.

Abstract

PURPOSE OF REVIEW

Vulnerable children with medical complexity are silent victims of the COVID-19 pandemic, impacted by lack of resources and sick caregivers. In this article, we examine ways in which the pandemic has increased the significant difficulties already experienced by these patients and their families. Increased awareness will lead to improvement in the disparities experienced by this population and improve the ability of healthcare providers to care for them.

RECENT FINDINGS

The number of children living with medical complexity is rapidly increasing. They face unique circumstances which can lead to compromise in care. This population is especially at risk for complications related to COVID, so may have a more prolonged admission with more morbidities. Children of ethnic minorities are also more impacted by severe illness and death. Finally, access to palliative care has been limited, which is a huge part in caring for these children who have life-long medical care needs.

SUMMARY

Children with medical complexity have unique circumstances and the entirety of the effect of the coronavirus pandemic on this group is unknown. While the medical world has found ways to adapt, these changes can increase disparities for this population. Given the increase in number of children with medical complexity living in the USA, it is important to continue to consider the unique challenges they face in the current pandemic and improve the care delivery for both the child and his or her family.

摘要

综述目的

患有复杂疾病的脆弱儿童是新冠疫情的无声受害者,受到资源匮乏和照料者患病的影响。在本文中,我们探讨了疫情加剧这些患者及其家庭已面临的重大困难的方式。提高认识将有助于改善这一人群所经历的差异,并提高医疗服务提供者照料他们的能力。

最新发现

患有复杂疾病的儿童数量正在迅速增加。他们面临着可能导致护理受到影响的独特情况。这一人群尤其容易出现与新冠相关的并发症,因此住院时间可能更长,病情也更严重。少数族裔儿童也更容易受到重症和死亡的影响。最后,姑息治疗的可及性有限,而这对于照顾这些有终身医疗需求的儿童至关重要。

总结

患有复杂疾病的儿童情况独特,新冠疫情对这一群体的整体影响尚不清楚。虽然医学界已找到适应方法,但这些变化可能会加剧这一人群的差异。鉴于美国患有复杂疾病的儿童数量增加,继续关注他们在当前疫情中面临的独特挑战,并改善对儿童及其家庭的护理服务非常重要。

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