da Silva Andressa Wanneska Martins, Meiners Micheline Marie Milward de Azevedo, Gallo Luciana Guerra, Oliveira Ana Flávia de Morais, Aridja Ursila Manga, Noronha Elza Ferreira
Tropical Medicine, Faculty of Medicine, University of Brasília, Brasília, Brazil.
Front Pharmacol. 2021 Sep 20;12:740383. doi: 10.3389/fphar.2021.740383. eCollection 2021.
The effectiveness of antiretroviral treatment has transformed HIV infection into a chronic transmissible condition, requiring health systems to adapt in order to care for people living with HIV. The Chronic Care Model (CCM) is the gold standard for this type of care in many countries. Among its tools, the Patient Assessment of Chronic Illness Care (PACIC) questionnaire gives the patient's perspective of the care provided. The aim of the present study was to adapt and apply, for the first time, the questionnaire to people living with HIV to determine their perception of the quality of care provided at a reference hospital in the Federal District of Brazil. This is a case study conducted in 2019 at a teaching hospital, with a convenience sample of 30 individuals treated for at least 1 year at the facility. The median PACIC score (3.5 with a range of 1.0-5.0) seems to suggest that the users perceive the outpatient care provided by the hospital as being basic. The "delivery system design/decision support" component was deemed the best (5.0, with a range of 1.0-5.0) and "follow-up/coordination" the worst (1.0, with a range of 1.0-5.0). The results suggest the need to improve the organization of care and make adequate use of community resources, in line with the CCM. The questionnaire makes it possible to determine the strengths and weaknesses of the care provided to people living with HIV and can be used as a planning and monitoring tool to improve management of the condition, with the contribution of the patient, in particular, thereby strengthening self-care.
抗逆转录病毒治疗的有效性已将艾滋病毒感染转变为一种慢性传染病,这就要求卫生系统做出调整,以便为艾滋病毒感染者提供护理。在许多国家,慢性病护理模式(CCM)是这类护理的金标准。在其工具中,慢性病护理患者评估(PACIC)问卷给出了患者对所提供护理的看法。本研究的目的是首次将该问卷应用于艾滋病毒感染者,以确定他们对巴西联邦区一家参考医院所提供护理质量的看法。这是一项于2019年在一家教学医院开展的案例研究,便利样本为30名在该机构接受治疗至少1年的患者。PACIC得分中位数(3.5,范围为1.0 - 5.0)似乎表明,使用者认为医院提供的门诊护理较为基础。“服务提供系统设计/决策支持”部分被认为是最好的(5.0,范围为1.0 - 5.0),而“随访/协调 ”部分最差(1.0,范围为1.0 - 5.0)。结果表明,有必要按照慢性病护理模式改进护理组织并充分利用社区资源。该问卷能够确定为艾滋病毒感染者提供的护理的优缺点,并且可以用作规划和监测工具,以改善病情管理,特别是在患者的参与下,从而加强自我护理。