Alzheimer Scotland Centre for Policy and Practice, School of Health and Life Sciences, University of the West of Scotland, Blantyre, Scotland, UK.
School of Health and Life Sciences, University of the West of Scotland, Blantyre, Scotland, UK.
Health Soc Care Community. 2022 May;30(3):e589-e604. doi: 10.1111/hsc.13618. Epub 2021 Oct 27.
Supported housing has been highlighted as a potential way to facilitate independent living for people with dementia by integrating housing with support or care services. However, the benefits and challenges of living with dementia in supported housing are not fully understood. This systematic review and thematic synthesis sought to understand how living in supported housing influences the lives of people with dementia, from the perspectives of people with dementia, their supporters, health and social care professionals. Seven databases were searched for qualitative research, date range: 1 January 2000-31 July 2021. Eleven published articles were included in the thematic synthesis. One core theme was generated, Maintaining Independence and Autonomy, divided into three subthemes - Support and Care, Social Relationships and the Physical Environment. Factors like person-centred care, social interaction and good environmental design contributed to the maintenance of independence and autonomy. Barriers like low staff ratios, stigma and limited access to the community led to a loss of independence and autonomy - often leading to people with dementia being referred or managed out of the settings. Although the articles acknowledged the importance of maintaining independence and autonomy for people with dementia, it appeared that supported housing settings often lacked the resources and facilities to make this a reality. More high-quality research is needed, particularly from the perspectives of people with dementia and their supporters, to understand if supported housing can delay care home admission, promote independence and autonomy and facilitate social networks and community connections for this population.
支持性住房已被强调为通过将住房与支持或护理服务相结合，为痴呆症患者实现独立生活的一种潜在方式。然而，痴呆症患者在支持性住房中生活的益处和挑战尚不完全清楚。本系统评价和主题综合旨在从痴呆症患者、他们的支持者、卫生和社会保健专业人员的角度了解居住在支持性住房中如何影响痴呆症患者的生活。从 2000 年 1 月 1 日至 2021 年 7 月 31 日，在七个数据库中搜索了定性研究，纳入了 11 篇已发表的文章进行主题综合。生成了一个核心主题，即维持独立性和自主性，分为三个子主题：支持和护理、社会关系和物理环境。以人为本的护理、社会互动和良好的环境设计等因素有助于维持独立性和自主性。而人员配备比例低、污名化和社区准入有限等障碍则导致独立性和自主性丧失，这往往导致痴呆症患者被转介或管理离开这些环境。尽管这些文章承认维持痴呆症患者独立性和自主性的重要性，但支持性住房环境似乎往往缺乏实现这一目标的资源和设施。需要更多高质量的研究，特别是从痴呆症患者及其支持者的角度，以了解支持性住房是否可以延迟入住养老院，促进独立性和自主性，并为这一人群促进社交网络和社区联系。
