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更安全的痴呆症护理空间:认知障碍的 LGBTQ+ 群体及其照顾者的观点

Safer dementia care spaces: Perspectives from LGBTQ+ people with cognitive impairment and caregivers.

作者信息

Stinchcombe Arne, Oueis Jeremy, Wilson Kimberley, Wright David Kenneth

机构信息

School of Psychology, University of Ottawa, Canada.

Department of Family Relations and Applied Nutrition, University of Guelph, Canada.

出版信息

Dementia (London). 2025 Feb;24(2):214-234. doi: 10.1177/14713012241284691. Epub 2024 Sep 18.


DOI:10.1177/14713012241284691
PMID:39293818
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11780964/
Abstract

The number of caregivers and people living with dementia and other related forms of cognitive impairment is increasing worldwide. Compared to heterosexual and cisgender individuals, studies suggest that lesbian, gay, bisexual, queer, or other sexual and/or gender minority people (LGBTQ+) are at a higher risk for known risk factors for cognitive impairment and dementia, stemming from minority stress experiences. Limited research has explored the distinct obstacles that LGBTQ+ people with cognitive impairment and caregivers encounter, especially within dementia care. The purpose of this study was to deepen our understanding regarding LGBTQ+ people with cognitive impairment and caregivers' experiences with dementia care spaces, and to identify the strategies that they perceive as effective in creating safer and more inclusive spaces. Fourteen LGBTQ+ participants aged 27-78 ( = 58.07), consisting of two individuals with cognitive impairment and 12 caregivers, were interviewed about the care needs of LGBTQ+ people with cognitive impairment and caregivers, and their experiences with dementia care spaces. Using reflexive thematic analysis, we identified three overarching themes from the data, indicating that LGBTQ+ people with cognitive impairment and caregivers feel left "on the margins" of dementia care and express a desire for their identities to be celebrated and recognized. Additionally, they proposed recommendations for policy change to foster safer and more inclusive spaces for dementia care. The findings call attention to the negative experiences of LGBTQ+ people with cognitive impairment and caregivers with dementia care, but also highlight the ways in which care practices can be transformed to effectively address their care needs.

摘要

在全球范围内,痴呆症及其他相关形式认知障碍患者的照料者和患者人数都在增加。与异性恋和顺性别者相比,研究表明女同性恋、男同性恋、双性恋、酷儿或其他性取向和/或性别少数群体(LGBTQ+)因遭受少数群体压力经历,在认知障碍和痴呆症已知风险因素方面面临更高风险。有限的研究探讨了认知障碍的LGBTQ+人群及其照料者所面临的独特障碍,尤其是在痴呆症护理方面。本研究的目的是加深我们对认知障碍的LGBTQ+人群及其照料者在痴呆症护理空间体验的理解,并确定他们认为在创建更安全、更包容空间方面有效的策略。我们采访了14名年龄在27至78岁之间(平均年龄=58.07岁)的LGBTQ+参与者,其中包括两名认知障碍患者和12名照料者,询问了认知障碍的LGBTQ+人群及其照料者的护理需求,以及他们在痴呆症护理空间的经历。通过反思性主题分析,我们从数据中确定了三个总体主题,表明认知障碍的LGBTQ+人群及其照料者感到被排除在痴呆症护理的“边缘”,并表达了希望自己的身份得到认可和尊重的愿望。此外,他们还提出了政策变革建议,以促进更安全、更包容的痴呆症护理空间。研究结果不仅关注了认知障碍的LGBTQ+人群及其照料者在痴呆症护理方面的负面经历,还突出了护理实践可以如何转变以有效满足他们护理需求的方式。

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Safer dementia care spaces: Perspectives from LGBTQ+ people with cognitive impairment and caregivers.

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引用本文的文献

[1]
Supporting Migrant 2SLGBTQIA+ Unpaid Caregivers for Family Members Living with Chronic Illnesses.

Healthcare (Basel). 2025-6-27

[2]
LGBTQ+ identity social support and care access among LGBTQ+ caregivers of individuals living with mild cognitive impairment, Alzheimer's disease, and related dementias.

Alzheimers Dement. 2025-5

本文引用的文献

[1]
The structural and social determinants of Alzheimer's disease related dementias.

Alzheimers Dement. 2023-7

[2]
Understanding Intersectional Ageism and Stigma of Dementia: Protocol for a Scoping Review.

JMIR Res Protoc. 2023-4-11

[3]
Perceived Discrimination in Health Care for LGBTQIA+ People Living With Parkinson's Disease.

J Gerontol B Psychol Sci Soc Sci. 2023-8-28

[4]
Key Determinants of Physical and Psychological Health-Related Quality of Life Over Time Among Midlife and Older LGBTQ and Sexual and Gender-Diverse Caregivers.

Gerontologist. 2023-5-9

[5]
Are dementia services and support organisations meeting the needs of Lesbian, Gay, Bisexual and Transgender (LGBT) caregivers of LGBT people living with dementia? A scoping review of the literature.

Aging Ment Health. 2022-10

[6]
Living with dementia in supported housing: A systematic review and thematic synthesis of qualitative research.

Health Soc Care Community. 2022-5

[7]
Disparities in Subjective Cognitive Impairment by Sexual Orientation and Gender in a National Population Based Study of U.S. Adults, 2013-2018.

J Aging Health. 2022

[8]
Characteristics of Sexual and Gender Minority Caregivers of People With Dementia.

J Aging Health. 2021-12

[9]
A Harmful Care: The Association of Informal Caregiver Burnout With Depression, Subjective Health, and Violence.

J Interpers Violence. 2022-6

[10]
A Review of Minority Stress as a Risk Factor for Cognitive Decline in Lesbian, Gay, Bisexual, and Transgender (LGBT) Elders.

J Gay Lesbian Ment Health. 2020

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